Attendance and feedback have been extremely positive for this new program.
The Cure SMA Summit of Strength Program kicked off in July and has continued to grow with great success! The Summit of Strength is a day of community and learning; it brings together families in their local areas to discuss local SMA care, support topics, research, advocacy, and more.
As of this past weekend, Cure SMA has now held 10 of the 16 one-day mini conferences, which are held in 16 cities across 15 states between July 2018 and February 2019. The average attendance so far has been 80 attendees, and the attendance keeps growing.
What attendees are saying…
“The presenters were excellent and having a chance to connect with others living with SMA was so helpful, especially since we haven’t been able to go to conference for several years.”
“Really appreciate having a local event to meet other families, learn about various topics and share information.”
“All the topics were well chosen and pertinent to the needs of the audience.”
“Very important for the community – Great job.”
“Being it is my first time here, I learned a lot!”
“It was excellent and very helpful and informative.”
Upcoming Summits of Strength:
Saturday, November 3: Chicago
Saturday, November 3: Baltimore
Saturday, November 10: Austin
Saturday, December 1: St. Louis
Saturday, January 12: Raleigh
Saturday, February 23: Northern California (Palo Alto)
All registrations are now open! Please contact [email protected] with any questions.
We thank AveXis for sponsoring this initiative, as well as all the wonderful speakers who have presented at each Summit of Strength.