News

May 2, 2018

Uniting the SMA Community Through Local Programs and Support

Uniting the SMA Community Through Local Programs and Support

After her son William's SMA type 2 diagnosis in April 2001, Heidi Johnson’s doctor immediately showed her the Cure SMA (then Families of SMA) website and said to look for support within the SMA community.

“After arriving home, we took the doc’s advice and opened up...

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Topics: Support & Care, About Us, Front Page News

March 1, 2018

Cure SMA Welcomes New Medical Advisory Council Committee Members

We are excited to welcome 20 new members to our Medical Advisory Council (MAC). These clinicians represent eleven specialties, including specialties that were not previously represented on the MAC.

Our new members are:

  • Alison Ballard, RN, MSN, Pediatric Nurse Practitioner and Neuromuscular Care...

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Topics: Support & Care, About Us, Front Page News

September 13, 2016

Cure SMA Welcomes Aboard New Board and Committee Members

Recently, Cure SMA confirmed three new board members and one new committee member. These new members will provide additional leadership in the areas of advocacy, FDA/regulation, and research. We extend a warm welcome to new board members Kelly Cole; Doug Kerr, MD, PhD, MBA; and Thomas Murray, PhD.

We also extend a warm welcome to new...

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Topics: Community & Awareness, About Us, Front Page News

April 29, 2016

Cure SMA Welcomes New Board and Committee Members

Recently, Cure SMA confirmed three new board members and several new committee members. These new members will provide additional leadership in the areas of advocacy, FDA/regulation, and research. We extend a warm welcome to new board members Annie Kennedy, Spencer Perlman, and John Porter, PhD.

We also extend a warm welcome to new...

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Topics: Community & Awareness, About Us, Front Page News

March 27, 2015

Cure SMA Welcomes the Virginia Chapter

Cure SMA Welcomes the Virginia Chapter

Cure SMA is pleased to announce the creation of a new chapter in Virginia. This chapter will also serve residents of Washington DC.

Led by chairpersons Jessica White (family support), Jim Ferry (fundraising), and Kyle & Laura Derkowski (communications/awareness), the chapter is...

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Topics: Community & Awareness, About Us, Front Page News

December 2, 2014

Cure SMA Funds 26 Research Projects in 2014

Our strategic research approach includes four areas—basic research, drug discovery, clinical trials, and clinical care—working together toward our vision of a world without SMA. Cure SMA has invested $57 million in research since 1984, with $35 million in the past decade alone....

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Topics: Our Impact, About Us, Research, Front Page News

November 21, 2014

SMA Drug Pipeline Continues to Grow

This is an exciting time for the entire SMA community, as we celebrate another year of increasing momentum toward our goal of a treatment and cure for SMA.

It’s also an exciting time for us at Cure SMA, as we’re looking forward to announcing over $1 million in new research grants in the next three months—part of our...

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Topics: Our Impact, Clinical Trials, About Us, Research

September 16, 2014

Applications for the Cure SMA Medical Advisory Board Due 10/1/14

Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets the agenda for proactive, creative, and collaborative leadership on issues that improve...

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Topics: Support & Care, About Us

September 11, 2014

Funding Process Reaches Next Steps for Spinal Muscular Atrophy Clinical Care Research

Funding Process Reaches Next Steps for Spinal Muscular Atrophy Clinical Care Research

At the end of last week, we announced the close of our for request for proposals (RFP) for clinical care research.

A clinical care RFP is an invitation for scientists to submit their best...

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Topics: Support & Care, About Us, Research

August 25, 2014

Cure SMA Announces New Research Funding

Cure SMA Announces New Research Funding

Cure SMA is proud to announce that we will be committing $1.8 million to new research funding over the next 12 months.

Fifteen years ago, we had just one potential drug in the beginning stages of preclinical discovery. Today we have over a dozen, including five now in clinical trials....

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Topics: Our Impact, About Us, Research

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