Latest News
Genentech Releases SMA Community Letter Recapping Spring Activities
On May 3, 2024, Genentech released an update to the SMA community related to Evrysdi® (risdiplam) and Genentech’s activities in service of the SMA community. Read the full community statement […]
Read More ›Accessible Air Travel Update – Next Steps
This week, Cure SMA urged the U.S. Department of Transportation (DOT) to strengthen and quickly implement its proposed rule on ensuring safe accommodations for air travelers with spinal muscular atrophy […]
Read More ›Cure SMA Launches New Resources to Enhance Clinical Trial Access
Cure SMA is pleased to announce the release of new resources to support our community’s ability to navigate the evolving landscape of SMA clinical trials. These resources are intended to […]
Read More ›Cure SMA Announces Expanded Phase 9 of SMA Industry Collaboration
Cure SMA is pleased to announce the launch of an expanded Phase 9 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical […]
Read More ›Participate in the Annual Cure SMA Community Update Survey – Open Now!
For the past seven years, the Cure SMA Community Update Survey has collected data and information on the SMA community’s experiences and daily challenges. Every single individual with SMA and […]
Read More ›Cure SMA Awards $150,000 Grant to Lyndsay Murray,PhD, at the University of Edinburgh in Scotland
Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA biology. Our Scientific Advisory Board […]
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