News

September 18, 2017

Applications for Cure SMA Medical Advisory Council Due October 15th

Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA.

The focus of the Council is to build on...

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Topics: Support & Care, Front Page News

August 3, 2017

Cure SMA Receives Donation from the Bugenske Family

Cure SMA Receives Donation from the Bugenske Family

Cure SMA recently received a donation of 14 special tomato feeder seats and 80 large sheepskin blankets from the Bugenske family. The feeder seats were immediately sent out, and helped Cure SMA fulfill the requests of each family on the equipment waiting list.

The donation of large...

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Topics: Support & Care, Front Page News

June 30, 2017

Cure SMA Funded Standard of Care Paper Published in Neuromuscular Disorders Journal

The journal Neuromuscular Disorders has published a paper reporting on the findings of an international workgroup convened to update the Standard of Care (SOC) for SMA. Cure SMA provided funding support for this project, and Mary Schroth, medical...

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Topics: Support & Care, Research, Front Page News

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