News

July 16, 2018

Summit of Strength Program Kicks Off in Cincinnati

Summit of Strength Program Kicks Off in Cincinnati

As a national organization comprised of 34 chapters, we know it’s important to leverage our collective strength and provide our community with personalized, local support.

On Saturday, Cure SMA held its inaugural Summit of Strength in Cincinnati, OH. This is the first of 16...

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Topics: Support & Care, Events & Fundraising, Front Page News

July 11, 2018

Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years

Dr. John Kissel, Chair of Neurology at OSU Wexner Medical Center, Retires After 40 Years

Dr. John Kissel has treated patients with neuromuscular disorders from all over the United States. He specializes in spinal muscular atrophy and has been instrumental in his practice at one of the country's leading centers in neuromuscular medicine.

Dr. Kissel’s interest in SMA...

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Topics: Support & Care, Research, Front Page News

May 17, 2018

Spring 2018 Issue of Directions Now Available

Spring 2018 Issue of Directions Now Available

The Spring 2018 issue of Directions is now available online. Check out our Support & Care publications page to download past issues of Directions and Cure SMA's Care...

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Topics: Support & Care, Our Impact, Front Page News

May 17, 2018

Cure SMA and Cytokinetics Announce National Platinum Partnership for 2018

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Topics: Support & Care, Events & Fundraising, Front Page News

May 2, 2018

Uniting the SMA Community Through Local Programs and Support

Uniting the SMA Community Through Local Programs and Support

After her son William's SMA type 2 diagnosis in April 2001, Heidi Johnson’s doctor immediately showed her the Cure SMA (then Families of SMA) website and said to look for support within the SMA community.

“After arriving home, we took the doc’s advice and opened up...

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Topics: Support & Care, About Us, Front Page News

May 1, 2018

Invitae Partners with Biogen to Offer Free Genetic Testing for SMA

Invitae Partners with Biogen to Offer Free Genetic Testing for SMA

Invitae Corporation recently announced that it will partner with Biogen to offer genetic testing at no charge to patients who may have...

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Topics: Support & Care, Research, Front Page News

April 17, 2018

Registration for the 2018 Annual SMA Conference Closes in Two Weeks

Registration for the 2018 Annual SMA Conference Closes in Two Weeks

The deadline to register for the 2018 Annual SMA Conference is just two weeks away! Registration will close on Friday, May 4th. Over 1,100 people have already registered – don’t miss your chance to engage with families, researchers and medical providers at largest...

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Topics: Support & Care, Conference, Front Page News

March 26, 2018

Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018.

As a part of their partnership, Biogen will be sponsoring all walk-n-rolls and galas across the US for the entirety of 2018, as well as the

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Topics: Support & Care, Events & Fundraising, Front Page News

March 23, 2018

House and Senate Vote to Increase Federal Funding for Newborn Screening Programs

House and Senate Vote to Increase Federal Funding for Newborn Screening Programs

Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the Health Resources and Services Administration (HRSA) Heritable Disorders Program by more than $2...

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Topics: Support & Care, Advocacy, Front Page News

March 13, 2018

Cure SMA to Host Inaugural Clinical Care Meeting

Cure SMA to Host Inaugural Clinical Care Meeting

Clinicians across the country are invited to share experiences, successes and ideas at the inaugural SMA Clinical Care Meeting to be held on Saturday, June 16, 2018 at the 2018 Annual SMA Conference in Dallas, Texas.

As Spinraza and future...

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Topics: Support & Care, Conference, Front Page News

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