News

May 14, 2019

Cure SMA Publishes Journal Article on Benefit-Risk Preferences in SMA

Your voice has been heard! 

Cure SMA has published a paper, titled, Evaluating Benefit-Risk Decision-Making in Spinal Muscular Atrophy: A First-Ever Study to Assess Risk Tolerance in the SMA Patient Community in the Journal of...

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Topics: Support & Care, Research, Front Page News

May 2, 2019

Cure SMA and Genentech Partner to Provide Travel Support to Adults with SMA the Annual SMA Conference

Cure SMA and Genentech Partner to Provide Travel Support to Adults with SMA the Annual SMA Conference

Cure SMA is thrilled to announce that we will be extending travel scholarship opportunities to adults with SMA (18 and over) who are attending the 2019 Annual SMA Conference, taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA.

Thanks to a generous grant funded by...

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Topics: Support & Care, Conference, Front Page News

April 12, 2019

Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference

Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference

Cure SMA is pleased to share that we have granted over 900 scholarships to date for the Annual SMA Conference taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA. Each year, the organization offers scholarships to newly diagnosed families, adults (18 and over) with SMA, and...

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Topics: Support & Care, Conference, Front Page News

April 11, 2019

Cure SMA Care Center Network Expands to 10 Sites

Cure SMA Care Center Network Expands to 10 Sites

In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...

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Topics: Support & Care, Our Impact, Front Page News

April 4, 2019

2019 Annual SMA Conference Registration Continues to Grow!

2019 Annual SMA Conference Registration Continues to Grow!

The 2019 Annual SMA Conference is rapidly approaching and conference registration is growing just as quickly!

This year’s conference will be one of the biggest ever and will include the Family Conference, the Researcher Meeting, and the Clinical Care Meeting.

Hotel rooms...

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Topics: Support & Care, Conference, Front Page News

April 2, 2019

What is the Summit of Strength Program?

What is the Summit of Strength Program?

Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength Program was a great success, and the 2019 Summit of Strength Program has officially begun!

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Topics: Community & Awareness, Support & Care, Front Page News

April 1, 2019

We're Celebrating Local Support

We're Celebrating Local Support

We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information and resources they need to live active, engaged, and hopeful lives today.

We’re dedicating the month of April to...

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Topics: Support & Care, Events & Fundraising, Front Page News

March 19, 2019

Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by...

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Topics: Support & Care, Our Impact, Front Page News

February 27, 2019

New Dates and Locations Announced for 2019 Summits of Strength

New Dates and Locations Announced for 2019 Summits of Strength

Cure SMA is pleased to announce that we will be continuing the Summit of Strength Program in 2019, adding 20 new events from March through November.

The Summit of Strength is a single-day educational event hosted by Cure SMA. Summits are crafted to provide information for people of all...

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Topics: Community & Awareness, Support & Care, Front Page News

February 13, 2019

Show Your Rare. Show You Care.

Show Your Rare. Show You Care.

1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare...

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Topics: Community & Awareness, Support & Care, Front Page News

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