News
May 17, 2018
Spring 2018 Issue of Directions Now Available
The Spring 2018 issue of Directions is now available online. Check out our Support & Care publications page to download past issues of Directions and Cure SMA's Care...
Topics: Support & Care, Our Impact, Front Page News
May 17, 2018
Cure SMA and Cytokinetics Announce National Platinum Partnership for 2018
Cure SMA and Cytokinetics are very pleased to announce that Cytokinetics has committed to a National Platinum Partnership for 2018....
Topics: Support & Care, Events & Fundraising, Front Page News
May 2, 2018
Uniting the SMA Community Through Local Programs and Support
After her son William's SMA type 2 diagnosis in April 2001, Heidi Johnson’s doctor immediately showed her the Cure SMA (then Families of SMA) website and said to look for support within the SMA community.
“After arriving home, we took the doc’s advice and opened up...
Topics: Support & Care, About Us, Front Page News
May 1, 2018
Invitae Partners with Biogen to Offer Free Genetic Testing for SMA
Invitae Corporation recently announced that it will partner with Biogen to offer genetic testing at no charge to patients who may have...
Topics: Support & Care, Research, Front Page News
April 17, 2018
Registration for the 2018 Annual SMA Conference Closes in Two Weeks
The deadline to register for the 2018 Annual SMA Conference is just two weeks away! Registration will close on Friday, May 4th. Over 1,100 people have already registered – don’t miss your chance to engage with families, researchers and medical providers at largest...
Topics: Support & Care, Conference, Front Page News
March 26, 2018
Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018
Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018.
As a part of their partnership, Biogen will be sponsoring all walk-n-rolls and galas across the US for the entirety of 2018, as well as the
Topics: Support & Care, Events & Fundraising, Front Page News
March 23, 2018
House and Senate Vote to Increase Federal Funding for Newborn Screening Programs
Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the Health Resources and Services Administration (HRSA) Heritable Disorders Program by more than $2...
Topics: Support & Care, Advocacy, Front Page News
March 13, 2018
Cure SMA to Host Inaugural Clinical Care Meeting
Clinicians across the country are invited to share experiences, successes and ideas at the inaugural SMA Clinical Care Meeting to be held on Saturday, June 16, 2018 at the 2018 Annual SMA Conference in Dallas, Texas.
As Spinraza and future...
Topics: Support & Care, Conference, Front Page News
March 1, 2018
Cure SMA Welcomes New Medical Advisory Council Committee Members
We are excited to welcome 20 new members to our Medical Advisory Council (MAC). These clinicians represent eleven specialties, including specialties that were not previously represented on the MAC.
Our new members are:
- Alison Ballard, RN, MSN, Pediatric Nurse Practitioner and Neuromuscular Care...
Topics: Support & Care, About Us, Front Page News
February 23, 2018
Last Week's Webinar on Treatment Access and Clinical Trials Now Available
A recording of last week’s webinar updating the community on treatment access and clinical trials is now available online. A PDF of the webinar presentation is also available for download.
An update on...
Topics: Community & Awareness, Support & Care, Front Page News
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