News
April 12, 2019
Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference
Cure SMA is pleased to share that we have granted over 900 scholarships to date for the Annual SMA Conference taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA. Each year, the organization offers scholarships to newly diagnosed families, adults (18 and over) with SMA, and...
Topics: Support & Care, Conference, Front Page News
April 11, 2019
Cure SMA Care Center Network Expands to 10 Sites
In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with spinal muscular atrophy (SMA) are able to receive high-quality, multidisciplinary care and access to new therapies. As of April 2019 there are 10...
Topics: Support & Care, Our Impact, Front Page News
April 4, 2019
2019 Annual SMA Conference Registration Continues to Grow!
The 2019 Annual SMA Conference is rapidly approaching and conference registration is growing just as quickly!
This year’s conference will be one of the biggest ever and will include the Family Conference, the Researcher Meeting, and the Clinical Care Meeting.
Hotel rooms...
Topics: Support & Care, Conference, Front Page News
April 2, 2019
What is the Summit of Strength Program?
Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength Program was a great success, and the 2019 Summit of Strength Program has officially begun!
Topics: Community & Awareness, Support & Care, Front Page News
April 1, 2019
We're Celebrating Local Support
We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information and resources they need to live active, engaged, and hopeful lives today.
We’re dedicating the month of April to...
Topics: Support & Care, Events & Fundraising, Front Page News
March 19, 2019
Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration
Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by...
Topics: Support & Care, Our Impact, Front Page News
February 27, 2019
New Dates and Locations Announced for 2019 Summits of Strength
Cure SMA is pleased to announce that we will be continuing the Summit of Strength Program in 2019, adding 20 new events from March through November.
The Summit of Strength is a single-day educational event hosted by Cure SMA. Summits are crafted to provide information for people of all...
Topics: Community & Awareness, Support & Care, Front Page News
February 13, 2019
Show Your Rare. Show You Care.
1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare...
Topics: Community & Awareness, Support & Care, Front Page News
January 15, 2019
Fall 2018 Issue of Directions Now Available
The Fall 2018 issue of Directions is now available online. Please visit our Support & Care Publications page to download this issue or past issues of...
Topics: Community & Awareness, Support & Care, Front Page News
January 7, 2019
Teen and Young Adult Survey Extended Through January 21st
Are you or a family member between the ages of 12 and 25? Do you want to share your opinion on living with SMA and what is important to you regarding treatment options?
In late November, Cure SMA launched the SMA Teen and Young Adult Clinical Meaningfulness Survey. Anyone with SMA...
Topics: Support & Care, Research, Front Page News
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