Advocacy

Hope on the Hill Advances Key SMA Legislative Priorities

December 8, 2014
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This year’s 4th Annual Hope on the Hill Congressional Dinner in Washington D.C. was a great success. Building on of this year’s Annual SMA Conference—also […]

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Families, Government, and Industry Leaders Unite to Help Cure SMA

November 13, 2014
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This year’s 4th Annual Hope on the Hill Congressional Dinner in Washington D.C. is less than three weeks away. At Cure SMA, we know that […]

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Urge Your Senators to Support Passage of the Newborn Screening Saves Lives Reauthorization Act

September 18, 2014
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The Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) passed the House of Representatives this summer but still has not yet received a vote in […]

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Call Congress and Urge Passage of The ABLE Act

August 25, 2014
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Congress appears to be on the verge of passing The Achieving a Better Life Experience (ABLE) Act of 2013, a bipartisan bill that would establish […]

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