Cure SMA and Ionis Announce Holiday Card Contest
We are excited to share that Cure SMA and Ionis Pharmaceuticals are once again teaming up for a holiday card contest! This contest is open to all members of the SMA community, including ...
Cure SMA Partners with the Clements Twins and Nail & Bone
The Clements Twins, Ava & Leah, are raising money and awareness for spinal muscular atrophy (SMA) through a partnership with Nail & Bone, a socially conscious nail polish company. Their cousin Shane was ...
SMA Awareness Month 2019 Has Begun!
SMA Awareness Month occurs in August! The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month and Cure SMA has been coordinating activities since 1996. August is a great time to ...
What People Are Saying: 2019 North Jersey Walk-n-Roll
The North Jersey Cure SMA Chapter held their 4th annual North Jersey Walk-n-Roll on June 22, 2019 at the Roosevelt Park. Walk-n-Roll is a fun, family friendly event that supports Cure SMA’s mission ...
Community Spotlight: Laura Watson
Laura Watson is team captain of Laura's Dream Team and fundraising committee co-chair of the North New Jersey Cure SMA Chapter. On Saturday, June 22, 2019, Laura is joining over 150 people at ...
Team Cure SMA to Participate in Vermont City Marathon
On Sunday, May 26th, Regina Philipps will participate in the Vermont City Marathon and has already raised over $13,000 for Team Cure SMA while training.As an avid runner, Regina joined Team Cure SMA ...
Community Spotlight: Kyle and Laura Derkowski
Kyle and Laura Derkowski live in Ashburn, Virginia and are co-chairs of the Cure SMA Virginia Chapter. Kyle is originally from Schenectady, New York and Laura from Bethlehem, Pennsylvania; the pair met during ...
Community Update Survey Q&A
Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas that are relevant to the real-world experiences of ...
What is the Summit of Strength Program?
Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength Program was a great success, and the 2019 ...
Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA
Nine Team Cure SMA runners completed the 2019 United Airlines New York City Half Marathon on Sunday, March 17. Together, the runners successfully raised over $15,000 for Cure SMA, the most in the ...
Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment
For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the voice of our community is powerful. By sharing ...
Join a Walk-n-Roll Near You
The Cure SMA Walk-n-Roll is a fun, family-friendly event that supports Cure SMA’s mission of driving breakthroughs in treatment and care and providing families the support they need for today. We welcome you ...