Our Impact

August is SMA Awareness Month!

August 1, 2023
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Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA […]

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Cure SMA Awards $100,000 Grant to Saravanan Arumugam, PhD, Universidad de Seville

April 5, 2023
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Saravanan Arumugam, PhD, was awarded $100,000 for his research project, “Role of Cytosolic and Mitochondrial Ca2+ in the Pathogenesis of Spinal Muscular Atrophy.” Dr. Arumugam’s […]

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District of Columbia Starts Screening for SMA During Rare Disease Month

February 22, 2023
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Cure SMA is pleased to announce that the District of Columbia (DC) is now screening babies born in DC for spinal muscular atrophy (SMA). The […]

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Cure SMA Awards $150,000 Grant to Florence Rage, PhD, at the Institute of Molecular Genetics of Montpellier

February 15, 2023
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Florence Rage, PhD, was awarded $150,000 for her research project, “Deciphering the Mechanisms of RNA Transport along Axons to Understand the Progression of Spinal Muscular […]

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Cure SMA Awards $150,000 Grant to Anton Blatnik, PhD, at The Ohio State University

February 8, 2023
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Anton Blatnik, PhD, at The Ohio State University has been awarded $150,000 for his research project, “Determining Primary Splicing Changes in Spinal Muscular Atrophy.” Dr. […]

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Cure SMA to Host 11th Annual Hope on the Hill Event in Washington, D.C.

December 5, 2022
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On December 6th, Cure SMA will highlight the progress made in spinal muscular atrophy (SMA) and recognize the advocacy that helped lead to this success […]

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The Giving Season is Here!

November 9, 2022
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Cure SMA leads the way to a world where everyone impacted by SMA is empowered to lead their best lives. As 2022 comes to a […]

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SMA Community Seeks SSI Improvements on Program’s 50th Anniversary

October 30, 2022
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Fifty years ago today, the Supplemental Security Income (SSI) program was created to “provide supplemental security income to individuals who have attained age 65 or […]

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Cure SMA Holds Patient-Led Listening Session with FDA

October 4, 2022
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On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) […]

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Cure SMA Holds Patient-Led Listening Session with FDA

October 4, 2022
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On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) […]

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