Our Impact

Special NBS Awareness Month Announcement: South Carolina Screens for SMA!

September 26, 2022
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Cure SMA is pleased to announce that South Carolina is now screening babies born in the state for spinal muscular atrophy (SMA). South Carolina Department […]

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Seat Elevators on Power Wheelchairs are a Necessity, not a Luxury, according to the SMA Community

September 13, 2022
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Individuals with spinal muscular atrophy (SMA) who utilize power wheelchairs for their mobility agree that seat elevation, which allows an individual to adjust their wheelchair […]

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Cure SMA Launches Benefit-Risk Survey to Assess Patient Perspective on Treatment Possibilities and Risks

September 8, 2022
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Cure SMA is conducting a survey to understand our community’s perspectives on treatment possibilities and tolerance for the side effects of currently available and planned […]

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Cure SMA Launches Request for Proposals for SMA Research Projects and Postdoctoral Fellowships

April 18, 2022
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Cure SMA is pleased to announce that we are accepting grant applications for funding of research projects and postdoctoral fellowships, under a competitive review by […]

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Cure SMA Announces Expanded Phase 7 of SMA Industry Collaboration

March 23, 2022
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Cure SMA is pleased to announce the launch of an expanded Phase 7 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted […]

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Cure SMA Releases Updated Drug Pipeline

December 13, 2021
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We’ve recently released an update to the SMA drug pipeline. This latest version includes: 20 active programs, including three approved therapies. 10 pharmaceutical partners. 12 […]

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Survey Alert: SMA Family Caregivers

December 2, 2021
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Family members of people with SMA play an active role in managing the daily lives of their loved one – from physical tasks like feeding, […]

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In Just Three Years, Cure SMA Marks Nationwide Milestone for 85% of U.S. Babies Now Screened at Birth for SMA

June 22, 2021
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The organization’s grassroots efforts give thousands of families new hope by securing widespread, state-by-state screening for SMA at birth Within three years of spinal muscular […]

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Cure SMA Publishes Manuscript on SMA Awareness, Screening, and Referral Patterns Amongst Pediatricians

May 28, 2021
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In a May 2021 issue of BMC Pediatrics, Cure SMA published a manuscript, titled “Awareness screening and referral patterns among pediatricians in the United States […]

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Cure SMA’s New Year Letter for 2021

January 1, 2021
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Dear SMA Community, While 2020 did not pan out as we had expected, Cure SMA remains extremely optimistic about the future for our community in […]

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