Community Spotlight

Community Spotlight: AJ Brockman of Brewhouse Gallery and Kelsey City Brewing Company

October 8, 2020
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October is National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we will be posting stories about adults with […]

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Community Spotlight: Xavier and Rose’s SMA Diagnosis

September 29, 2020
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Carrie Menke is a South Dakota native who resides in Sioux Falls with her husband Tony and their four children — Xavier, Colette, Avila, and […]

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Community Spotlight: Braedon’s Newborn Screening Diagnosis

September 8, 2020
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September is Newborn Screening Awareness Month, a chance to talk about the progress we have made in getting spinal muscular atrophy (SMA) added to newborn […]

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Community Spotlight: Nicole Stickane Advocates for Newborn Screening in Texas

August 13, 2020
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In late July, the Texas Newborn Screening Advisory Committee held a meeting— virtually, of course —to hear an update on the status of statewide newborn […]

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Community Spotlight: Avery’s Diagnosis from Newborn Screening

July 17, 2020
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July 2020 marks the 2-year anniversary of when the U.S. Secretary of Health and Human Services recommended that SMA be added to state newborn screening […]

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Community Spotlight: Ben Lou’s Formula for Life

June 26, 2020
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Ben Lou is a 17-year-old from San Diego who is fluent in both English and Chinese. He is a math whiz and fascinated by science. […]

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