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SMA Researchers and Clinicians from Around the World Gather at the 29th Annual SMA Research & Clinical Care Meeting

August 21, 2025
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At the end of June, SMA researchers and clinicians from around the world gathered in Anaheim, California, for the 29th Annual SMA Research & Clinical […]

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Cure SMA Shares Patient Voice and Needs with FDA

August 20, 2025
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  One of Cure SMA’s top priorities is to relay the SMA community’s experiences, preferences, and unmet needs to the United States Food and Drug […]

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Cure SMA Educates Insurers on Unmet Needs and Access Barriers of the SMA Community

August 18, 2025
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  Cure SMA completed a year-long advocacy effort to educate public and private insurers about the current state of spinal muscular atrophy (SMA), including the […]

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Key Congressional Committee Recommends New Federal Research in SMA

August 4, 2025
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A key congressional committee approved fiscal year 2026 legislation that now prioritizes new federal research funding for spinal muscular atrophy (SMA). The U.S. Senate Appropriations […]

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This August is Spinal Muscular Atrophy (SMA) Awareness Month! 

August 1, 2025
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Whether you live with SMA, know someone who does, work in research or care, or are beginning your journey with the community-SMA Awareness Month is […]

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Thank You for an Amazing 2025 Annual SMA Conference!

July 24, 2025
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Thank you to everyone who attended the 2025 Annual SMA Conference at the Disneyland Hotel in Anaheim, California! It was an impactful weekend of opportunities […]

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The Future of Accessible Air Travel and Current Challenges for the SMA Community at Cure SMA’s 2025 Annual Conference

July 14, 2025
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At this year’s Annual Cure SMA Conference in Anaheim, California, more than 2,800 attendees from across the country came together to learn, connect, and imagine […]

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Cure SMA Awards $140,000 Grant to Mandana Arbab, PhD, at Boston Children’s Hospital

July 3, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $100,000 Grant to Yongchao Ma, PhD, at Ann & Robert H. Lurie Children’s Hospital of Chicago

July 1, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, at Columbia University Irving Medical Center

June 26, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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