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Thank You for a Wonderful 2022 Annual SMA Conference!

July 22, 2022
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Thank you to everyone who attended the 2022 Annual SMA Conference at the Disneyland Hotel in Anaheim, California! It was an impactful weekend of opportunities […]

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Cure SMA Attends Spring 2022 Conferences to Promote Findings from Industry Collaboration Initiatives

June 9, 2022
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Cure SMA is pleased to announce the participation of scientific leadership in the 2022 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference (March 13–16, 2022), […]

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Check Out Cure SMA’s State of SMA Report

June 6, 2022
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Cure SMA is pleased to announce the launch of its first annual State of SMA report. The purpose of this report is to share highlights […]

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Cure SMA Announces Major Newborn Screening Milestone with Addition of Two New SMA Screening States

June 1, 2022
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With today’s newborn screening action by Oregon and New Mexico, Cure SMA has reached a major screening milestone for spinal muscular atrophy (SMA), with 97 […]

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SMA Community Update from Novartis Gene Therapies

June 1, 2022
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We are pleased to share a community update on Novartis Gene Therapies’ Clinical Trial Program.

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FDA Approves Genentech’s Evrysdi (risdiplam) For Use in Babies Under Two Months with Spinal Muscular Atrophy

May 31, 2022
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Genentech, a member of the Roche Group, today announced that the U.S. Food and Drug Administration (FDA) has approved a label extension for Evrysdi® (risdiplam) to […]

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Cure SMA Launches Request for Proposals for SMA Research Projects and Postdoctoral Fellowships

April 18, 2022
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Cure SMA is pleased to announce that we are accepting grant applications for funding of research projects and postdoctoral fellowships, under a competitive review by […]

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Cure SMA Announces Expanded Phase 7 of SMA Industry Collaboration

March 23, 2022
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Cure SMA is pleased to announce the launch of an expanded Phase 7 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted […]

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Cure SMA Support Services Now Expanded to Individuals and Families in Puerto Rico

March 15, 2022
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Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital support and resources that help people navigate life […]

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Biohaven Licenses a Phase 3-Ready Anti-Myostatin Adnectin for Spinal Muscular Atrophy (SMA)

February 25, 2022
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Biohaven Pharmaceutical Holding Company Ltd., announced today that it entered into a worldwide license agreement with Bristol Myers Squibb for the development and commercialization rights to […]

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