Front Page News

Cure SMA Publishes Manuscript on SMA Awareness, Screening, and Referral Patterns Amongst Pediatricians

May 28, 2021
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In a May 2021 issue of BMC Pediatrics, Cure SMA published a manuscript, titled “Awareness screening and referral patterns among pediatricians in the United States […]

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Cure SMA Announces 2022 Annual SMA Conference

May 26, 2021
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Cure SMA is excited to announce that we will reunite the SMA community in-person for the 2022 Annual SMA Conference in Anaheim, CA–Thursday, June 16 […]

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Community Spotlight: Doug McCullough

May 20, 2021
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Doug McCullough was raised on a dairy farm in Pennsylvania and now resides in Central New Jersey. He is a self-described “fun-loving guy.” “I take […]

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Community Spotlight: Chan Family

May 13, 2021
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Ten-year-old Brady Chan from North Carolina has big goals that stem from his passion for video games. He is part of an e-gaming team, where his favorite games include “Brawl Starts” and […]

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Cure SMA Launches New Teen & Adult Independence Assistance Package – Check It Out Today!

May 12, 2021
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Along with funding SMA research and care, Cure SMA provides thousands of individuals with SMA and their families with vital support and resources that help […]

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Cure SMA-Funded Researchers at Ohio State University Publish Paper on Effect of Nusinersen in Adults with SMA

May 10, 2021
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Dr. Bakri Elsheikh and colleagues at The Ohio State University have published a paper in the Journal, Frontiers in Neurology, titled “Safety, Tolerability, and Effect of Nusinersen […]

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Community Statement: Quarterly Update from Novartis Gene Therapies

May 6, 2021
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Dear Members of the SMA Community, Novartis Gene Therapies is committed to working with our partners in the SMA community to make a difference in […]

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Community Spotlight: Elizabeth Lockwood 

April 29, 2021
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In honor of National Volunteer Month in April, Cure SMA has shared stories and quotes from volunteers who support our programs and further grow our […]

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Cure SMA-Funded Researchers at Columbia University Publish Paper on Fatigue in SMA

April 26, 2021
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Dr. Jacqueline Montes and colleagues at Columbia University—part of the Pediatric Neuromuscular Clinical Research Network (PNCRN) funded by Cure SMA—have published a paper in the […]

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Community Statement from Novartis Gene Therapies

April 23, 2021
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Dear SMA Community, Novartis Gene Therapies is committed to working with our partners in the SMA community to make a difference in the diagnosis, treatment, […]

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