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Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA

November 6, 2018
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Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate […]

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Summit of Strength Program Receives Positive Feedback and Increases Attendance

November 1, 2018
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Attendance and feedback have been extremely positive for this new program. The Cure SMA Summit of Strength Program kicked off in July and has continued […]

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Registration is Now Open for the 2019 Annual SMA Conference!

October 31, 2018
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Registration is now open for the 2019 Annual SMA Conference! This year’s conference will be held at the Disneyland Hotel in Anaheim, CA from Friday, […]

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Kansas Adopts SMA Newborn Screening as Several Other States Move Closer to Adoption

October 30, 2018
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Progress is currently being made in several states for getting SMA added to Newborn Screening panels. We are delighted to share this news with you […]

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Meet the NDEAM Webinar Panelists

October 24, 2018
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October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. […]

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Meet the National Disability Employment Awareness Month (NDEAM) Panelists

October 24, 2018
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October is National Disability Employment Awareness Month (NDEAM)! Hear directly from adults living with SMA in the workforce. Register for Cure SMA’s first NDEAM webinar. […]

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NDEAM Spotlight: Jaclyn Greenwood

October 23, 2018
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The below guest blog post was written by Jaclyn Greenwood in honor of National Disability Employment Awareness Month. Jaclyn is a board certified genetic counselor […]

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National Disability Employment Awareness Month Spotlight: Kim Hill

October 19, 2018
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The below NDEAM Spotlight was written by Kim Hill, Disability Integration Specialist at the Oklahoma Department of Emergency Management, who also lives with SMA Type […]

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Register for Cure SMA’s First National Disability Employment Awareness Month Webinar

October 18, 2018
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October is National Disability Employment Awareness Month (NDEAM)! In its honor, Cure SMA is hosting our first NDEAM webinar where the audience will hear directly […]

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AveXis Issues Community Statement on FDA Filing for SMA Type I

October 18, 2018
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AveXis has provided the following community statement on their FDA filing for SMA type I. Dear SMA Community, AveXis, a Novartis company, is pleased to […]

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