Front Page News

Cure SMA Launches a Family Support App for Your Mobile Device!

September 26, 2018
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Cure SMA is excited to announce the launch of a new mobile app for the SMA community. The Cure SMA Guide app is a family […]

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Community Spotlight: Allyson Henkel

September 24, 2018
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My son Pete and I began advocating to have SMA added to the newborn screening panel in Pennsylvania in December of 2017. Pete was 13-years […]

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Community Spotlight: The Lasko Family

September 17, 2018
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After Max began receiving Spinraza in 2017, we wanted to do our part to help ensure that children born with SMA would be diagnosed as […]

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Cure SMA’s Approach to Newborn Screening

September 12, 2018
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The complexities of newborn screening require a sophisticated, multifaceted approach. With this in mind, Cure SMA has been working on newborn screening through several different […]

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SMA Newborn Screening Advancements

September 12, 2018
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The first FDA approval of a therapy for SMA has created an opportunity for our community to move forward on another of our long-term priorities: […]

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New York to Implement Newborn Screening for SMA October 1st

September 5, 2018
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New York State will screen every child for SMA beginning October 1, according to the New York State Department of Health. New York joins Missouri, […]

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Sweet Baby Zane Funds New Equipment Pool Item

August 31, 2018
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Cure SMA is excited to announce that 12 new Panthera pediatric lightweight wheelchairs have been purchased thanks to generous funding from Sweet Baby Zane. These […]

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Cure SMA Receives Generous Donation from the Cash Scanlon-Philips Foundation

August 28, 2018
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Cure SMA would like to thank the Cash Scanlon-Philips Foundation for their generous donation to fund a years’ worth of type II newly diagnosed care packages. […]

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Cure SMA Provides Funding for “Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA)” Published in Neurology

August 28, 2018
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In a recent paper titled, “Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA)” Dr. Chad Heatwole and others describe a cross-sectional study of […]

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Community Spotlight: The Anton Jensen Family

August 27, 2018
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Quinn Anton Jensen was diagnosed with spinal muscular atrophy (SMA) type II on March 2007 in Iowa City. Quinn’s mom, Nancy, recalls the genetic testing […]

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