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Cure SMA Awards $150,000 Grant to Brunhilde Wirth, PhD, Institute of Cologne, Germany

March 29, 2018
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Cure SMA has awarded a $150,000 research grant to Brunhilde Wirth, PhD, at Institute of Cologne, Germany, for her project, “Study of combinatorial therapy based […]

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Cure SMA Awards $50,000 Grant to Rashmi Kothary, PhD, University of Ottawa

March 29, 2018
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Cure SMA has awarded a $50,000 research grant to Rashmi Kothary, PhD, at the University of Ottawa, for his project, ” The shifting landscape of […]

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Scholar Rock Granted Orphan Drug Designation by the FDA for SRK-015 for the Treatment of Patients with SMA

March 29, 2018
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Scholar Rock today announced that the U.S. Food and Drug Administration (FDA) has granted Orphan Drug Designation (ODD) to its lead antibody product candidate, SRK-015, […]

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Cure SMA Awards $150,000 Grant to Robin Parks, PhD, University of Ottawa

March 28, 2018
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Cure SMA has awarded a $150,000 research grant to Robin Parks, PhD, at the University of Ottawa, for his project, “Serum-derived exosomes as a biomarker […]

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Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

March 26, 2018
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Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018. As a part of their partnership, Biogen will be sponsoring […]

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House and Senate Vote to Increase Federal Funding for Newborn Screening Programs

March 23, 2018
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Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the […]

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Cure SMA Awards $150,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 21, 2018
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Cure SMA has awarded a $150,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Testing the potential of SMN-AS1 as […]

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Record Number of Abstracts Submitted for 2018 SMA Researcher Meeting

March 20, 2018
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Abstract submission is now closed for the 2018 SMA Researcher Meeting. We are excited to announce that we received 128 submissions, a record number. Our […]

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The Discovery of SMA

March 20, 2018
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In 2016, the spinal muscular atrophy community celebrated the approval of the first-ever treatment that targets the underlying genetic cause of SMA. This was a […]

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Roche Releases Community Statement on RG7916 and Olesoxime Programs

March 15, 2018
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Roche has provided the following community statement on RG7916 and Olesoxime investigational programs. Dear SMA Community, We are very pleased to share an update of […]

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