Front Page News
Cure SMA Launches New Resources to Enhance Clinical Trial Access
Cure SMA is pleased to announce the release of new resources to support our community’s ability to navigate the evolving landscape of SMA clinical trials. […]
Read More ›Cure SMA Announces Expanded Phase 9 of SMA Industry Collaboration
Cure SMA is pleased to announce the launch of an expanded Phase 9 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted […]
Read More ›Biogen Releases SMA Community Letter
On April 19, 2024, Biogen released an update to the SMA community sharing recent data presentations from Spring conferences and latest updates from their SPINRAZA® […]
Read More ›Participate in the Annual Cure SMA Community Update Survey – Open Now!
For the past seven years, the Cure SMA Community Update Survey has collected data and information on the SMA community’s experiences and daily challenges. Every […]
Read More ›Cure SMA Awards $150,000 Grant to Lyndsay Murray,PhD, at the University of Edinburgh in Scotland
Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]
Read More ›Government Funding Bill Supports New SMA Research to Address Unmet Needs
Cure SMA’s year-long advocacy campaign to educate Congress and the Administration about the unmet needs of individuals with spinal muscular atrophy (SMA) has concluded with […]
Read More ›Cure SMA Awards $114,000 Grant to Michael Tellier, PhD, at the University of Leicester in the United Kingdom
Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]
Read More ›Apitegromab Linked to Improved Outcomes for Those with Spinal Muscular Atrophy
The study included 58 individuals with SMA types 2 and 3 who were treated with IV apitegromab for 52 weeks. At 36 months, treatment resulted […]
Read More ›Cure SMA Awards $150,000 Grant to Allison Ebert, PhD, at The Medical College of Wisconsin
Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]
Read More ›New Biomarker Data Add Further Evidence Supporting the Potential Benefit of SPINRAZA® (nusinersen) in Infants and Toddlers with Unmet Clinical Needs after Gene Therapy
New data from the RESPOND study show that neurofilament levels, an indicator of neurodegeneration, were reduced in nearly all study participants treated with SPINRAZA […]
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