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Cure SMA Awards $150,000 Grant to Anton Blatnik, PhD, at The Ohio State University

February 8, 2023
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Anton Blatnik, PhD, at The Ohio State University has been awarded $150,000 for his research project, “Determining Primary Splicing Changes in Spinal Muscular Atrophy.” Dr. […]

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The Wait is Over! Register for a Spring Walk-n-Roll

February 6, 2023
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Exciting news! Registration is now open for our spring Walk-n-Roll season. It’s a new year, so make a resolution to help us cure spinal muscular […]

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Cure SMA Supports Clinical Trial Readiness

January 26, 2023
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In recent years, the FDA-approval of three new SMA treatments has made it possible for a growing number of affected individuals to receive disease-modifying drugs. […]

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Cure SMA Awards $150,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires

January 26, 2023
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Unveils Advocacy 101 Video Series in Conjunction with 118th Congress

January 13, 2023
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Individuals with SMA and their families can learn how to advocate with their Members of Congress more effectively on issues important to them and the […]

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Genentech Releases SMA Community Letter

December 30, 2022
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Our industry partners at Genentech recently released an SMA community letter summarizing 2022 developments and initiates. Check it out here!

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Share Your Air Travel Concerns & Experiences for Cure SMA Report to Congress

December 15, 2022
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The law that governs air travel in the United States is about to expire. Next year, Congress must consider air travel changes through a new […]

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SMA Community Progress & Advocacy Featured at Cure SMA Hope on the Hill Event

December 12, 2022
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Congressional leaders and key partners, supporters, and members of the spinal muscular atrophy (SMA) community celebrated SMA achievements and advocacy at Cure SMA’s 11th Annual […]

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Cure SMA to Host 11th Annual Hope on the Hill Event in Washington, D.C.

December 5, 2022
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On December 6th, Cure SMA will highlight the progress made in spinal muscular atrophy (SMA) and recognize the advocacy that helped lead to this success […]

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Biogen Releases Q3 SMA Community Statement

November 29, 2022
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Learn about Biogen’s latest news in SMA by viewing their Community Statement and a related video.  

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