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Cure SMA-Funded Researchers Publish Paper on Motor Neuron and Astrocyte Defects

March 1, 2016
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Cure SMA-funded researcher Chien-Ping Ko has published a paper in the Journal of Neuroscience, called “Defects in Motoneuron–Astrocyte Interactions in Spinal Muscular Atrophy.” The research […]

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2016 Annual SMA Conference on Track to Break Attendance Records

February 22, 2016
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Registration for the Annual SMA Conference is well on its way to a record-setting number. Over 700 families and researchers have registered for the conference […]

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Cure SMA Awards $140,000 Grant to Rashmi Kothary, MD, Ottawa Hospital Research Institute

February 18, 2016
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Cure SMA has awarded a $140,000 research grant to Rashmi Kothary, MD, at the Ottawa Hospital Research Institute for his project, ” Muscle satellite cell […]

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Cure SMA Awards $140,000 Grant to Megerditch Kiledjian, PhD, of Rutgers

February 11, 2016
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Cure SMA has awarded a $140,000 research grant to Megerditch Kiledjian, PhD, at Rutgers, The State University of New Jersey, for his project, “Novel Strategies […]

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Senate HELP Committee Passes Innovation Bills

February 9, 2016
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The Senate Health, Education, Labor and Pensions (HELP) Committee has passed 7 bills out of committee as part of its “step-by-step” approach to Innovation and […]

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Update on 21st Century Cures/Innovation: the Senate’s “Step-by-Step” Approach

February 2, 2016
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Cure SMA has been carefully monitoring the consideration of 21st Century Cures on Capitol Hill. As you know, the House passed legislation in July last […]

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Cure SMA-Funded Researcher Publishes Paper on Biomarker Study

January 21, 2016
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Cure SMA-funded researcher Stephen Kolb has published a paper in the journal Annals of Clinical and Translational Neurology. This paper reported on the baseline results […]

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Cure SMA Testifies Before FDA at PDUFA Meeting

January 19, 2016
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The Prescription Drug User Fee Act (PDUFA), the law that allows the FDA to collect fees from drug manufacturers to fund the new drug approval […]

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Cure SMA Receives Generous Donation from Fighting for Kaiden Foundation

January 13, 2016
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Cure SMA would like to thank the Fighting for Kaiden Foundation for their generous donations to Cure SMA programs. That generosity is providing both support […]

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Biogen and Ionis Provide Update on Nusinersen (IONIS-SMNRx)

January 11, 2016
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Biogen and Ionis Pharmaceuticals recently provided an update on the clinical development of nusinersen (IONIS-SMNRx), which is currently being tested in Phase 3 clinical trials: […]

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