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Cure SMA Receives Generous Donation from Fighting for Kaiden Foundation

January 13, 2016
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Cure SMA would like to thank the Fighting for Kaiden Foundation for their generous donations to Cure SMA programs. That generosity is providing both support […]

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Biogen and Ionis Provide Update on Nusinersen (IONIS-SMNRx)

January 11, 2016
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Biogen and Ionis Pharmaceuticals recently provided an update on the clinical development of nusinersen (IONIS-SMNRx), which is currently being tested in Phase 3 clinical trials: […]

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Abstract Submission Opens for 2016 SMA Researcher Meeting

January 8, 2016
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Abstract submission is now open for the 2016 SMA Researcher Meeting, which will be held June 16-18 as part of the Annual SMA Conference in […]

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Roche Announces New Clinical Trial of RG7916

January 5, 2016
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Roche, along with partners PTC Therapeutics and the SMA Foundation, recently provided the following update on the development of RG7800 and on a new clinical […]

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AveXis Announces the Completion of Enrollment for Phase 1 Gene Therapy Trial

January 4, 2016
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AveXis has announced that they have completed enrollment in a Phase 1 study testing systemic delivery of gene therapy for SMA. The trial has enrolled […]

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Cytokinetics Opens Enrollment for Phase 2 Trial

January 4, 2016
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Cytokinetics has opened enrollment for a Phase 2 study testing CK-2127107 in teens and adults with SMA type II, III or IV. We are excited […]

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Cure SMA Funding Leads to 18 New Research Publications in 2015

December 17, 2015
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An important goal of our research funding strategy is to share scientific findings with the broader scientific community. To help accomplish this goal, scientists who […]

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Cure SMA Funds 28 Research Projects in 2015, as Drug Pipeline Grows to 18 Programs

December 16, 2015
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Our approach to research is focused on continually expanding the pipeline of potential drugs and therapies for SMA, cultivating new approaches and advancing promising ideas. […]

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Cure SMA Reaches Thousands of Families in 2015

December 14, 2015
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Each year, Cure SMA provides thousands of families with vital support and resources to help them live active, engaged and hopeful lives. Our programs provide […]

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5th Annual Congressional Dinner Brings Together Families, Government and Industry

December 10, 2015
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On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. […]

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