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High School Students Lead the Way at Concert for a Cure

June 3, 2015
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The 15th Annual Concert for a Cure was held on Saturday, May 9, 2015, a the Diablo Country Club in Danville, CA and was a […]

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Novartis Launches Phase 2 Clinical Trial

June 3, 2015
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Novartis has published a paper in the journal Nature Chemical Biology, detailing promising results in their program to develop an orally available SMA drug that […]

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Cure SMA Announces Partnership with The District Policy Group

June 2, 2015
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Cure SMA has announced a new partnership with the District Policy Group, a boutique lobbying, public policy, and advocacy practice, to advocate for several key […]

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15th Annual New England Walk-n-Roll Raises Over $100,000

May 28, 2015
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The 15th Annual New England Chapter Walk-n-Roll was held on Saturday, May 16, at beautiful DCR Wompatuck Park in Hingham, MA. The sun was shining […]

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Cure SMA Receives NIH Grant

May 27, 2015
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For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the SMA Researcher Meeting. This year’s […]

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In Memory of Ken Emerson

May 26, 2015
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Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, […]

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21st Century Cures Unanimously Passes Committee

May 22, 2015
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Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and […]

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Collaborative Ways Cure SMA is Driving Research Results

May 19, 2015
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Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work together […]

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Meet the SMA Family that Helped Inspire 21st Century Cures

May 15, 2015
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In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has helped inspire this legistlation. Chairman Fred Upton has […]

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Cytokinetics and Astellas Release Further Details on Upcoming Phase 2 Trial

May 14, 2015
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Cytokinetics, in partnership with Astellas, has officially announced that recruitment will begin in the second half of 2015 for a Phase 2 clinical trial testing […]

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