Front Page News
Global Genes Features Cure SMA in Patient Voice Project
Global Genes recently published, “From Molecules to Medicines: How Patients Can Share Their Voices Through the Drug Development Process.” This toolkit was the product of […]
Cure SMA Awards $30,000 Grant to Jocelyn Cote, PhD, University of Ottawa
Cure SMA has awarded a $30,000 research grant to Jocelyn Cote, PhD, at the University of Ottawa for his project, “The role of SMN as […]
Cure SMA Awards $140,000 Grant to Arthur Burghes, PhD, The Ohio State University
Cure SMA has awarded a $140,000 research grant to Arthur Burghes, PhD, at The Ohio State University, for his project, “Defining the contribution of RNP […]
Cure SMA Awards $90,000 Grant to Antoine Cl̩ry, PhD, ETH Zurich
Cure SMA has awarded a $90,000 research grant to Antoine Cléry, PhD, at ETH Zurich for his project, “Novel approaches against spinal muscular atrophy by […]
Cure SMA Awards $140,000 Grant to Christine Beattie, PhD, Ohio State University
Cure SMA has awarded a $140,000 research grant to Christine Beattie, PhD, at the Ohio State University, for her project, “Identification of SMN:HuD bound RNAs […]
Cure SMA Releases Schedule for the 2016 Annual SMA Conference
Cure SMA has released the schedule for the 2016 Annual SMA Conference, which will be held at Disneyland in Anaheim, CA, June 16-19. This schedule […]
AveXis Releases New Data on Phase 1 Clinical Trial
AveXis has released new data from their current Phase 1 clinical trial testing AVXS-101, a systemic delivery of gene therapy for SMA. The data from […]
Record Number of Abstracts Submitted for the 2016 SMA Researcher Meeting
Abstract submission is now closed for the 2016 SMA Researcher Meeting. We are excited to announce that we received 118 submissions, a record number. Our […]
Senate HELP Committee Passes Another 7 Innovation Bills
The Senate Health, Education, Labor and Pensions (HELP) Committee yesterday passed an additional 7 bills out of committee. Along with the 7 bills previously passed […]
Winter 2015 Issue of Directions Now Online
The Winter 2015 issue of Directions is now available! Please visit our Support & Care Publications page to download this issue or past issues of […]