Latest News
Novartis Highlights Accessible Travel Partnership in Summer Community Update
From their time at the Cure SMA Annual Conference, to their SMAshing My Limits partnership with Becoming rentABLE, opening up accessible beach houses, treehouses, and yurts for family travel, to […]
Newly published research from Cure SMA: What helps young adults with SMA successfully transition to adult care?
As increased treatment options have helped more people with spinal muscular atrophy (SMA) live longer, healthier lives, more young adults are navigating the transition to adult care. This means moving […]
Thank you to everyone who attended the 2026 Annual SMA Conference
Thank You Thank you to everyone who attended the 2026 Annual SMA Conference at Disney’s Yacht & Beach Club Hotel in Orlando, Florida! It was an impactful weekend of […]
Biogen Shares Conference Highlights and New High Dose SPINRAZA Resources
From the High Dose SPINRAZA symposium to a family-friendly poster session, Biogen recaps their experience at this year’s Annual SMA Conference and highlights new tools for the community. Read their […]
Visit the Cure SMA Hub at This Year’s Annual SMA Conference
The Cure SMA Hub is your go-to space at the Annual SMA Conference to learn about key Cure SMA programs and opportunities for involvement. Stop by to sign up for […]
FDA Grants Breakthrough Therapy Designation to Biogen’s Salanersen for Spinal Muscular Atrophy
Biogen recently announced that the U.S. Food and Drug Administration (FDA) has granted Breakthrough Therapy Designation to salanersen, an investigational therapy being studied for the treatment of spinal muscular atrophy […]