Latest News
Protected: Cure SMA Announce the Publication of “Impact of Early Intervention on Motor Milestone Achievement in Spinal Muscular Atrophy”
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Meet Winnie, the 11-Year-Old Author Helping Kids Face Surgery
Winnie is an 11-year-old living with spinal muscular atrophy (SMA) who loves musicals, drawing, and playing sports with her brothers. After her recent surgery, she wrote a book to help […]
Cure SMA Launches Their “This Gen Next 10” Campaign
Today, Cure SMA is proud to launch our year-end campaign: This Gen, Next 10. It’s a chance to look at where this community started, how far we’ve come, and what […]
Adults with SMA Share Their Unmet Needs and Independence Barriers in Washington D.C.
This week, the unmet health and everyday living needs of adults with spinal muscular atrophy (SMA) took center stage in Washington, DC, in an event organized by Cure SMA. Adults […]
Biogen Shares Update on the Salanersen Development Program
(opens in new tab) From newly opened Phase 3 studies enrolling infants through adults to the first participants already dosed in the U.S. and Japan, Biogen shares an update on […]
The 2026 Annual SMA Research & Clinical Care Meeting Summaries Are Here!
In June, SMA researchers and clinicians from around the world gathered in Orlando for the 30th Annual SMA Research & Clinical Care Meeting – to share early findings, compare notes […]

