Latest News
Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage
On Tuesday, November 29, more than 160 people from the SMA community – including government and industry partners – gathered for the 6th Annual “Hope on the Hill” Congressional Dinner. […]
Read More ›Annual South Florida Gala of Hope Raises over $1 Million in 6 Years
The 6th annual Cure SMA South Florida Chapter Gala of Hope raised a record amount of $310,000 on November 17th. Total funds raised by the gala now exceed $1 million in its six […]
Read More ›Help Us Shape the Future Together, and Reach our Goal of $750,000
This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug Application for Spinraza (nusinersen) was […]
Read More ›Over 35 Cure SMA-Funded Researchers Contribute to Comprehensive SMA Encyclopedia
Spinal Muscular Atrophy: Disease Mechanisms and Therapy, the first comprehensive encyclopedia of SMA, has been published by Elsevier. Over thirty five of the book’s authors currently are or have been […]
Read More ›Adult Scholarships Offered for the 2017 Annual SMA Conference
Cure SMA is pleased to announced that, thanks to a generous grant from The Dhont Family Foundation, we are offering scholarships to the 2017 Annual SMA Conference for all adults […]
Read More ›Registration is Now Open for the 2017 SMA Researcher Meeting
Registration is now open for industry and academic researchers to attend our 2017 SMA Researcher Meeting, which will be held June 29-July 1 at Disney World in Orlando, FL. The […]
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