Latest News
Cure SMA Shares Patient Voice and Needs with FDA
One of Cure SMA’s top priorities is to relay the SMA community’s experiences, preferences, and unmet needs to the United States Food and Drug Administration (FDA). This enables the […]
Read More ›Cure SMA Educates Insurers on Unmet Needs and Access Barriers of the SMA Community
Cure SMA completed a year-long advocacy effort to educate public and private insurers about the current state of spinal muscular atrophy (SMA), including the unmet needs of individuals with […]
Read More ›Key Congressional Committee Recommends New Federal Research in SMA
A key congressional committee approved fiscal year 2026 legislation that now prioritizes new federal research funding for spinal muscular atrophy (SMA). The U.S. Senate Appropriations Committee recognized the unmet medical […]
Read More ›This August is Spinal Muscular Atrophy (SMA) Awareness Month!
Whether you live with SMA, know someone who does, work in research or care, or are beginning your journey with the community-SMA Awareness Month is a time to come together […]
Read More ›Thank You for an Amazing 2025 Annual SMA Conference!
Thank you to everyone who attended the 2025 Annual SMA Conference at the Disneyland Hotel in Anaheim, California! It was an impactful weekend of opportunities to connect, learn, and have […]
Read More ›The Future of Accessible Air Travel and Current Challenges for the SMA Community at Cure SMA’s 2025 Annual Conference
At this year’s Annual Cure SMA Conference in Anaheim, California, more than 2,800 attendees from across the country came together to learn, connect, and imagine a better future-including a future […]
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