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Nevada Starts Screening for SMA – Only One State Remains!

December 21, 2023
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Nevada has become the 49th state to begin screening for spinal muscular atrophy (SMA). Nevada State Public Health Laboratory officials confirmed with Cure SMA that beginning December 21, 2023, all […]

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Analysis: Cure SMA’s Risk/Benefit Survey

December 20, 2023
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One of Cure SMA’s top priorities is to relay the SMA community’s treatment experiences and preferences to the United States Food and Drug Administration (FDA). This helps the FDA make […]

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Winter Immunization Recommendations

December 12, 2023
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Cooler weather serves as a reminder to explore how to keep ourselves healthy through the cold and flu season. What you can do to protect yourself and others from winter […]

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Novartis Gene Therapies Releases SMA Community Statement

December 11, 2023
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This week, Novartis Gene Therapies released an SMA community statement detailing the progress on enrollment for both STEER and STRENGTH clinical trials, their investigational intrathecal (IT) OAV101 studies. Check out […]

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Genentech Releases SMA Community Letter with Evrysdi (risdiplam) Updates

December 7, 2023
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Our partners at Genentech recently provided an SMA Community Letter regarding Evrysdi® (risdiplam) and their clinical development program. Visit this link to learn more.

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Registration is Open for the 2024 Annual SMA Conference!

December 7, 2023
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We are excited to announce that registration is now open for the 2024 Annual SMA Conference, which will be held at the JW Marriott Austin in Austin, Texas from Thursday, June […]

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