Latest News
Community Spotlight: Holly Ianno and Family
Leland Ianno is eight years old, but he’s an old soul with a deep curiosity, a love of people, and a passion for history. His mom, Holly, says “Leland is […]
Read More ›100% of States Now Screening Newborns for SMA
You did it! We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states with the addition of Hawaii at the […]
Read More ›Nevada Starts Screening for SMA – Only One State Remains!
Nevada has become the 49th state to begin screening for spinal muscular atrophy (SMA). Nevada State Public Health Laboratory officials confirmed with Cure SMA that beginning December 21, 2023, all […]
Read More ›Analysis: Cure SMA’s Risk/Benefit Survey
One of Cure SMA’s top priorities is to relay the SMA community’s treatment experiences and preferences to the United States Food and Drug Administration (FDA). This helps the FDA make […]
Read More ›Winter Immunization Recommendations
Cooler weather serves as a reminder to explore how to keep ourselves healthy through the cold and flu season. What you can do to protect yourself and others from winter […]
Read More ›Novartis Gene Therapies Releases SMA Community Statement
This week, Novartis Gene Therapies released an SMA community statement detailing the progress on enrollment for both STEER and STRENGTH clinical trials, their investigational intrathecal (IT) OAV101 studies. Check out […]
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