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Cure SMA Launches a Family Support App for Your Mobile Device!

September 26, 2018
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Cure SMA is excited to announce the launch of a new mobile app for the SMA community. The Cure SMA Guide app is a family support program that takes a […]

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Community Spotlight: Allyson Henkel

September 24, 2018
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My son Pete and I began advocating to have SMA added to the newborn screening panel in Pennsylvania in December of 2017. Pete was 13-years old, type II SMA. He […]

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Community Spotlight: The Lasko Family

September 17, 2018
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After Max began receiving Spinraza in 2017, we wanted to do our part to help ensure that children born with SMA would be diagnosed as early as possible. Inspired by […]

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Cure SMA’s Approach to Newborn Screening

September 12, 2018
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The complexities of newborn screening require a sophisticated, multifaceted approach. With this in mind, Cure SMA has been working on newborn screening through several different avenues, bringing our full resources […]

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SMA Newborn Screening Advancements

September 12, 2018
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The first FDA approval of a therapy for SMA has created an opportunity for our community to move forward on another of our long-term priorities: newborn screening. SMA is the […]

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New York to Implement Newborn Screening for SMA October 1st

September 5, 2018
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New York State will screen every child for SMA beginning October 1, according to the New York State Department of Health. New York joins Missouri, Utah, Minnesota, Indiana and Illinois […]

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