Our Impact

Cure SMA Awards $149,202 Grant to Rico Schieweck, PhD, at the Luxembourg Center for Systems Biomedicine (LCSB)

June 24, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $50,000 Grant to Tianyuan Shi, PhD, at the University of Hong Kong

June 21, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $150,000 Grant to Charlotte Sumner, MD, at Johns Hopkins University School of Medicine

June 20, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Double Your Power, Double Our Progress: Help Cure SMA Unlock $150,000 for SMA Research!

May 19, 2025
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During our Nunemaker Family Research Community Challenge, all donations will be matched up to $150,000! Cure SMA is proud to announce the launch of our […]

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SMA Community Risk Tolerance Update: Comparison of 2022 and 2017 SMA Risk/Benefit Survey Data

March 6, 2025
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One of Cure SMA’s top priorities is to relay the SMA community’s treatment experiences and preferences to the United States Food and Drug Administration (FDA). […]

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Cure SMA Caregiving Priority Signed into Law

January 6, 2025
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On January 4th, 2025, President Biden signed the Think Differently Database Act (H.R. 670) into law, marking a significant legislative victory for the SMA community. […]

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Cure SMA Celebrates New DOT Rule for Accessible Air Travel

December 17, 2024
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Cure SMA is thrilled to share a major win for the SMA community: the U.S. Department of Transportation (DOT) has finalized its rule on ensuring […]

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SMA Community Advocacy Wins and Champions Celebrated at Cure SMA Event

November 20, 2024
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Individuals with spinal muscular atrophy (SMA) and their families recognized congressional champions and celebrated advocacy progress at Cure SMA’s Hope on the Hill event. U.S. […]

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Celebrate 40 Years of Impact – Join Us in Making a Difference!

November 19, 2024
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Thank you for being an essential part of this journey and for believing in our mission. As we mark 40 years of dedicated service to […]

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Make an Impact with Cure SMA’s Mission, Milestones, Momentum Campaign

November 1, 2024
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We’re kicking off our Mission, Milestones, Momentum Year-End Campaign with an incredible $50,000 matching gift. In honor of Hunter Rhodes, living with SMA, the Johns […]

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