Our Impact

Key Congressional Committee Recommends New Federal Research in SMA

August 4, 2025
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A key congressional committee approved fiscal year 2026 legislation that now prioritizes new federal research funding for spinal muscular atrophy (SMA). The U.S. Senate Appropriations […]

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Cure SMA Awards $140,000 Grant to Mandana Arbab, PhD, at Boston Children’s Hospital

July 3, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $100,000 Grant to Yongchao Ma, PhD, at Ann & Robert H. Lurie Children’s Hospital of Chicago

July 1, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, at Columbia University Irving Medical Center

June 26, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $149,202 Grant to Rico Schieweck, PhD, at the Luxembourg Center for Systems Biomedicine (LCSB)

June 24, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $50,000 Grant to Tianyuan Shi, PhD, at the University of Hong Kong

June 21, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Cure SMA Awards $150,000 Grant to Charlotte Sumner, MD, at Johns Hopkins University School of Medicine

June 20, 2025
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

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Double Your Power, Double Our Progress: Help Cure SMA Unlock $150,000 for SMA Research!

May 19, 2025
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During our Nunemaker Family Research Community Challenge, all donations will be matched up to $150,000! Cure SMA is proud to announce the launch of our […]

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SMA Community Risk Tolerance Update: Comparison of 2022 and 2017 SMA Risk/Benefit Survey Data

March 6, 2025
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One of Cure SMA’s top priorities is to relay the SMA community’s treatment experiences and preferences to the United States Food and Drug Administration (FDA). […]

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Cure SMA Caregiving Priority Signed into Law

January 6, 2025
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On January 4th, 2025, President Biden signed the Think Differently Database Act (H.R. 670) into law, marking a significant legislative victory for the SMA community. […]

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