Search Results: Living with SMA issues
Community Update Survey
Make today a breakthrough. Every individual with spinal muscular atrophy (SMA) and their families bring a unique perspective that collectively help us drive further progress […]
Musculoskeletal
Make today a breakthrough. Muscle weakness can cause several complications for individuals with spinal muscular atrophy (SMA). These complications are referred to as orthopedic or […]
Quality of Life
Make today a breakthrough. There are options to consider after receiving a spinal muscular atrophy (SMA) diagnosis. Please know that the decisions to be made […]
Advocacy
Make today a breakthrough. State and federal policies impact nearly all aspects of life for people with spinal muscular atrophy (SMA). Advocacy is critical in […]
Infants & Children
Make today a breakthrough. A team approach and recent medical advances have improved the outlook for infants and children with spinal muscular atrophy (SMA). Cure […]
Update on Genentech/Roche Initiation of MANATEE Clinical Study
We are pleased to share an update on Genentech’s, a member of the Roche Group, initiation of MANATEE, a new global Phase 2/3 clinical study […]
Community Spotlight: I am…Viola Dwyer
February 28 is Rare Disease Day. Throughout the month—in recognition of our Redefining Rare initiative—we have been posting stories about SMA community members, showcasing their […]
Community Spotlight: Nicole Stickane Advocates for Newborn Screening in Texas
In late July, the Texas Newborn Screening Advisory Committee held a meeting— virtually, of course —to hear an update on the status of statewide newborn […]
Community Spotlight: The Forcier Family
Kara and Ryan Forcier, of Stillwater, Minn., were on a rollercoaster almost immediately after the birth of their son, Zachary. Zachary was born with skin […]
Community Spotlight: Maria Kaloidis
Maria Eleni Kaloidis is a 22-year-old in her final year at Post University. Like most women her age, she enjoys spending time with her family […]