Search Results: Living with SMA issues
Why Give for Giving Tuesday?
Make today a breakthrough. Our spinal muscular atrophy (SMA) community has made great progress, but our work is not over! Through your generous donation, we […]
Community Update from Genentech
We are pleased to share the following SMA community letter from our partners at Genentech on their clinical development programs and initiatives. Dear SMA Community, […]
Community Update Survey
Make today a breakthrough. Every individual with spinal muscular atrophy (SMA) and their families bring a unique perspective that collectively help us drive further progress […]
Research Study Opportunities
Make today a breakthrough. By participating in a research study, you will help the scientific and research communities accelerate therapy development for spinal muscular atrophy […]
Musculoskeletal
Make today a breakthrough. Muscle weakness can cause several complications for individuals with spinal muscular atrophy (SMA). These complications are referred to as orthopedic or […]
Quality of Life
Make today a breakthrough. There are options to consider after receiving a spinal muscular atrophy (SMA) diagnosis. Please know that the decisions to be made […]
Advocacy
Make today a breakthrough. State and federal policies impact nearly all aspects of life for people with spinal muscular atrophy (SMA). Advocacy is critical in […]
Infants & Children
Make today a breakthrough. A team approach and recent medical advances have improved the outlook for infants and children with spinal muscular atrophy (SMA). Cure […]
Update on Genentech/Roche Initiation of MANATEE Clinical Study
We are pleased to share an update on Genentech’s, a member of the Roche Group, initiation of MANATEE, a new global Phase 2/3 clinical study […]
Community Spotlight: I am…Viola Dwyer
February 28 is Rare Disease Day. Throughout the month—in recognition of our Redefining Rare initiative—we have been posting stories about SMA community members, showcasing their […]