News

June 11, 2019

The 2019 Annual SMA Conference Booklet is Now Posted Online

The 2019 Annual SMA Conference booklet is now available for download. The booklet includes information on workshops, special events and details of the Annual SMA Conference, including:

1. A complete schedule, full...

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Topics: Conference, Front Page News

June 11, 2019

Family Friendly Research Poster Session Presenters Announced

Family Friendly Research Poster Session Presenters Announced

The Family Friendly Research Poster Session will be held on Saturday, June 29th from 6:30pm to 8:00pm at the 2019 Annual SMA Conference. 

The Family Friendly Research Poster Session allows for one-on-one interactions between families and researchers. Cure SMA has invited...

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Topics: Conference, Research, Front Page News

June 3, 2019

Cure SMA to Host "Evening in the Park" at Disneyland Thanks to Support from AveXis

Cure SMA to Host

Conference attendees will enjoy a magical “Evening in the Park” at Disneyland thanks to special support from AveXis, a Novartis company.

All registered attendees for the family conference will receive (1) ticket that provides twilight entry to one of the...

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Topics: Conference, Front Page News

May 28, 2019

Cure SMA to Host Adult Lounge and Expanded Adult Social at Annual Conference Thanks to Biogen and the Dhont Family Foundation

Cure SMA to Host Adult Lounge and Expanded Adult Social at Annual Conference Thanks to Biogen and the Dhont Family Foundation

Cure SMA will be offering two great programming opportunities for adults (18 and over) with SMA attending the 2019 Annual SMA Conference next month – an adult lounge and two adult social events.

Thanks to a generous grant funded by Biogen, Cure SMA will be providing an exclusive...

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Topics: Conference, Front Page News

May 2, 2019

Cure SMA and Genentech Partner to Provide Travel Support to Adults with SMA the Annual SMA Conference

Cure SMA and Genentech Partner to Provide Travel Support to Adults with SMA the Annual SMA Conference

Cure SMA is thrilled to announce that we will be extending travel scholarship opportunities to adults with SMA (18 and over) who are attending the 2019 Annual SMA Conference, taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA.

Thanks to a generous grant funded by...

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Topics: Support & Care, Conference, Front Page News

April 29, 2019

2019 Annual SMA Conference Registration Closes May 17

2019 Annual SMA Conference Registration Closes May 17

Registration for the 2019 Annual SMA Conference closes on Friday, May 17th.

Hotel rooms are rapidly booking up – be sure to make your reservations ASAP before they’re all sold out!

Please note when arranging your travel plans...

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Topics: Conference, Front Page News

April 16, 2019

2019 Annual SMA Conference Events Announced

2019 Annual SMA Conference Events Announced

The 2019 Annual SMA Conference is just over two months away and Cure SMA is excited to announce the details of the events held at this year’s conference.

Open to all conference attendees, the popular Meet & Greet will be held on the...

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Topics: Conference, Front Page News

April 12, 2019

Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference

Cure SMA Grants More Than 900 Scholarships for Annual SMA Conference

Cure SMA is pleased to share that we have granted over 900 scholarships to date for the Annual SMA Conference taking place June 28-July 1, 2019 at Disneyland Resort in Anaheim, CA. Each year, the organization offers scholarships to newly diagnosed families, adults (18 and over) with SMA, and...

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Topics: Support & Care, Conference, Front Page News

April 8, 2019

2019 Annual SMA Conference Schedule is Released

2019 Annual SMA Conference Schedule is Released

Cure SMA has released the schedule for the 2019 Annual SMA Conference, which will be held at the Disneyland Hotel in Anaheim, California from Friday, June 28 – Monday, July 1.

We look forward to...

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Topics: Conference, Front Page News

April 4, 2019

2019 Annual SMA Conference Registration Continues to Grow!

2019 Annual SMA Conference Registration Continues to Grow!

The 2019 Annual SMA Conference is rapidly approaching and conference registration is growing just as quickly!

This year’s conference will be one of the biggest ever and will include the Family Conference, the Researcher Meeting, and the Clinical Care Meeting.

Hotel rooms...

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Topics: Support & Care, Conference, Front Page News

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