Advocacy
Tell Your Senator to Support Innovations for Healthier Americans
We need your help in contacting your Senators to tell them that legislation promoting innovation and research is extremely important to you and that the […]
Cure SMA Publishes Journal Article on the Patient Voice
Cure SMA, along with collaborators from Biogen and the SMA Foundation, have published a paper in the journal BMC Neurology. Over the past year, we’ve […]
House of Representatives Passes Ensuring Access to Clinical Trials Act
The House of Representatives has passed the Ensuring Access to Clinical Trials Act of 2015 (EACT). This bill already passed the Senate in July, and […]
FDA Engagement Update: The Voices of SMA
Thanks to our vibrant community, August was one of our largest and best awareness months ever, with unprecedented levels of public awareness and outreach for […]
House of Representatives Passes 21st Century Cures
The House of Representatives has passed 21st Century Cures. Cure SMA is proud to support this legislation. Thank you for your calls and tweets to […]
Cure SMA Announces Partnership with The District Policy Group
Cure SMA has announced a new partnership with the District Policy Group, a boutique lobbying, public policy, and advocacy practice, to advocate for several key […]
Cure SMA Receives NIH Grant
For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the SMA Researcher Meeting. This year’s […]
21st Century Cures Unanimously Passes Committee
Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and […]
Cure SMA Joins The Research Acceleration and Innovation Network
Cure SMA has become a participating organization of The Research Acceleration and Innovation Network (TRAIN), a program of FasterCures, bringing the total number of venture […]
Update on SMA-FDA Interactions
The SMA drug pipeline has grown dramatically in just over a decade. Of the 17 programs in the pipeline, seven of these are in clinical […]