Community Awareness
Meet the SMA Family that Helped Inspire 21st Century Cures
In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has helped inspire this legistlation. Chairman Fred Upton has […]
Read More ›Cure SMA Joins The Research Acceleration and Innovation Network
Cure SMA has become a participating organization of The Research Acceleration and Innovation Network (TRAIN), a program of FasterCures, bringing the total number of venture […]
Read More ›Update on SMA-FDA Interactions
The SMA drug pipeline has grown dramatically in just over a decade. Of the 17 programs in the pipeline, seven of these are in clinical […]
Read More ›New 21st Century Cures Discussion Draft Released
The US House of Representatives Energy and Commerce Committee has released a new 21st Century Cures discussion draft. This is a revised and expanded version […]
Read More ›Share Your SMA Story for a New Research Project
Cure SMA is reaching out on behalf of Communispace to invite people caring for a family member with Spinal Muscular Atrophy to participate in a […]
Read More ›Cure SMA Welcomes the Virginia Chapter
Cure SMA is pleased to announce the creation of a new chapter in Virginia. This chapter will also serve residents of Washington DC. Led by […]
Read More ›Cure SMA Releases Updated Overview of Research Model
When Cure SMA first started funding research thirty years ago, we had to build up from virtually nothing. It’s no easy task. Drug development relies […]
Read More ›How Our Cure SMA Community is Raising Awareness
Spinal muscular atrophy is the number one genetic cause of death for infants, and 1 in 50 people carry the genetic mutation that causes SMA. […]
Read More ›Cure SMA Annual Campaign Sets $1 Million Goal
When our year-end campaign began in mid-November, we set an initial goal of raising $540,000. Our community quickly met that challenge, so we increased our […]
Read More ›21st Century Cures Discussion Document Released
The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to […]
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