Community Awareness

NIH Releases Summary of the SO-SMART Workshop

December 29, 2014
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During the Annual SMA Conference in Washington DC this past June, the National Institutes of Health (NIH) hosted a workshop on clinical trial design in […]

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Fall 2014 Issue of Directions Now Online

December 26, 2014
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The Fall 2014 issue of Directions is now available. Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from […]

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Erin Trainor Memorial Fund Reaches Milestone

December 15, 2014
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In February 1994, Barbara and Gene Trainor lost their five-month-old daughter Erin to SMA type I. Throughout the past 20 years, the Trainor family, friends, […]

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Miller McNeil Woodruff Foundation Gives Generous Gift to Cure SMA

December 15, 2014
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The Miller McNeil Woodruff Foundation has awarded an amazing $87,000 to Cure SMA, to help fund research that will lead to a treatment and cure […]

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Hope on the Hill Advances Key SMA Legislative Priorities

December 8, 2014
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This year’s 4th Annual Hope on the Hill Congressional Dinner in Washington D.C. was a great success. Building on of this year’s Annual SMA Conference—also […]

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Families, Government, and Industry Leaders Unite to Help Cure SMA

November 13, 2014
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This year’s 4th Annual Hope on the Hill Congressional Dinner in Washington D.C. is less than three weeks away. At Cure SMA, we know that […]

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Together, We Can Cure SMA

November 11, 2014
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Cure SMA is our name, and it’s also our rallying cry. It’s why we keep funding research and family support. And we know it’s why […]

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BAYADA Pediatrics Renews National Sponsorship with Cure SMA

November 6, 2014
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Cure SMA and BAYADA Pediatrics is proud to jointly announce that BAYADA has renewed its partnership with Cure SMA, as a national sponsor of the […]

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Cure SMA Honors Scott Geller with 1st Annual Community Partnership Award

October 23, 2014
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We are proud to announce Scott Geller, who chaired the Chesapeake Chapter Golf Outing for fourteen years, as the first ever recipient of the Annual […]

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Join Us in Kansas City

October 20, 2014
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Earlier this year, we announced that our 2015 Annual SMA Conference will be held in Kansas City. We’ll be opening registration for the conference in […]

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