Community Awareness

Community Statement from Scholar Rock Regarding SRK-015

January 10, 2020
Posted in , ,

Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today highlighted key […]

Read More ›

Community Spotlight: Angela Wrigglesworth

October 31, 2019
Posted in , ,

October has been National Disability Employment Awareness Month, and throughout the month, you have heard stories about adults in the workforce who live with SMA. […]

Read More ›

Community Spotlight: Steven Verdile

October 29, 2019
Posted in , ,

October has been National Disability Employment Awareness Month, and throughout the month, you have heard stories about adults in the workforce who live with SMA. […]

Read More ›

Cure SMA and Ionis Announce Holiday Card Contest

October 11, 2019
Posted in ,

We are excited to share that Cure SMA and Ionis Pharmaceuticals are once again teaming up for a holiday card contest! This contest is open […]

Read More ›

Cure SMA Partners with the Clements Twins and Nail & Bone

October 9, 2019
Posted in

The Clements Twins, Ava & Leah, are raising money and awareness for spinal muscular atrophy (SMA) through a partnership with Nail & Bone, a socially […]

Read More ›

SMA Awareness Month 2019 Has Begun!

August 1, 2019
Posted in ,

SMA Awareness Month occurs in August! The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month and Cure SMA has been coordinating activities […]

Read More ›

Community Spotlight: Laura Watson

June 17, 2019
Posted in , ,

Laura Watson is team captain of Laura’s Dream Team and fundraising committee co-chair of the North New Jersey Cure SMA Chapter. On Saturday, June 22, […]

Read More ›

Team Cure SMA to Participate in Vermont City Marathon

May 9, 2019
Posted in , ,

On Sunday, May 26th, Regina Philipps will participate in the Vermont City Marathon and has already raised over $13,000 for Team Cure SMA while training. […]

Read More ›

Community Spotlight: Kyle and Laura Derkowski

April 24, 2019
Posted in , ,

Kyle and Laura Derkowski are co-chairs of the Cure SMA Virginia Chapter. The pair met during their first year in college through a mutual friend […]

Read More ›

Community Update Survey Q&A

April 16, 2019
Posted in , , ,

Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas […]

Read More ›
Scroll to Top