Front Page News
Cure SMA Offer Perspectives on Combination Therapy for SMA
New developments in treatments for spinal muscular atrophy (SMA) over the last few years have changed what is possible for people with SMA, allowing them […]
Team Cure SMA Launches 2021 Race Series for Full SMA Community
You can get a head start on your healthy New Year’s resolutions and sign up today for our 2021 Team Cure SMA endurance race series! […]
Cure SMA to Host Webinar Series on Wellness for the SMA Community
With consideration of the current COVID-19 pandemic and beyond, Cure SMA continues to advocate for the importance of overall health and wellness. Therefore, we are […]
Cure SMA’s New Year Letter for 2021
Dear SMA Community, While 2020 did not pan out as we had expected, Cure SMA remains extremely optimistic about the future for our community in […]
Genentech End-of-Year Community Statement
Dear SMA Community, As 2020 draws to a close, we want to provide an overview of our recent work in the community over the fourth […]
Biogen Provides SMA Community Update on DEVOTE Study
Below we have provided an update from Biogen regarding the status of its DEVOTE clinical trial. For more information about SPINRAZA (nusinersen), visit https://www.curesma.org/spinraza/. ++++++++++++++++++++ […]
Community Spotlight: Brian Chiorello
Brian Chiorello is a Principal Service Delivery Manager at a financial services company near where he lives in Orlando, FL. He resides there with his […]
Community Spotlight: The Hoskin Family
High school sweethearts, Steven and Amy Hoskin, and their 19-month-old son, Grayson, reside outside Sacramento, CA. Steven describes them as a goofy bunch, always playing […]
Cure SMA, Novartis Publish Economic Burden of SMA Analysis in Journal of Market Access & Health Policy
Recently, Cure SMA and colleagues at Novartis Gene Therapies published a manuscript titled, “Economic burden of spinal muscular atrophy: an analysis of claims data” in […]
Answering Questions about COVID-19 Vaccination and SMA
To the full spinal muscular atrophy (SMA) community, we want you to know that Cure SMA is continuing to support you with information and resources […]