Front Page News
Cure SMA’s New Year Letter for 2020
Dear SMA Community, We are excited to be kicking off a new year and a new decade full of promise for the SMA community. Over […]
Community Spotlight: The Forcier Family
Kara and Ryan Forcier, of Stillwater, Minn., were on a rollercoaster almost immediately after the birth of their son, Zachary. Zachary was born with skin […]
Community Spotlight: Scurria Family
John and Krista Scurria, of Baton Rouge, La., believe in a parent’s intuition. Krista first became worried about the development of her oldest child, Josh, […]
A Look Back at 2019: Cure SMA Research Year-in-Review
During our last fiscal year—July 1, 2018, to June 30, 2019—Cure SMA funded more than $7 million in new research and ongoing research. The resources […]
Cure SMA Awards Grants to Four States to Expediate the Implementation of SMA Newborn Screening
With an incidence of approximately one in 11,000, more than 360 infants will be born annually with spinal muscular atrophy (SMA). Newborn screening can help […]
Biogen Issues Q4 2019 Community Statement on Spinraza
Dear Members of the SMA Community, As part of Biogen’s ongoing commitment to individuals living with, and caregivers affected by, spinal muscular atrophy (SMA), we […]
Community Spotlight: The Veit Family
Elizabeth and Brian Veit live in Jefferson City, Mo., with their two children—Benjamin, who is 6 years old, and Kate, who is 5 years old. […]
9th Annual “Hope on the Hill” Congressional Dinner Featured Dr. Francis Collins, National Institutes of Health (NIH)
The 9th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, December 3, 2019 at The Willard Hotel in Washington, DC. More than […]
Fall 2019 Issue of Compass Now Available
The Fall 2019 issue of Compass is now available online. In this issue we provide a one-year update on the roll-out of the Cure SMA […]
Registration Now Open for the 2020 Annual SMA Conference!
We are excited to announce that registration is now open for the 2020 Annual SMA Conference, which will be held at Disney’s Yacht & Beach […]