Front Page News
Cure SMA’s Approach to Newborn Screening
The complexities of newborn screening require a sophisticated, multifaceted approach. With this in mind, Cure SMA has been working on newborn screening through several different […]
Read More ›SMA Newborn Screening Advancements
The first FDA approval of a therapy for SMA has created an opportunity for our community to move forward on another of our long-term priorities: […]
Read More ›New York to Implement Newborn Screening for SMA October 1st
New York State will screen every child for SMA beginning October 1, according to the New York State Department of Health. New York joins Missouri, […]
Read More ›Sweet Baby Zane Funds New Equipment Pool Item
Cure SMA is excited to announce that 12 new Panthera pediatric lightweight wheelchairs have been purchased thanks to generous funding from Sweet Baby Zane. These […]
Read More ›Cure SMA Receives Generous Donation from the Cash Scanlon-Philips Foundation
Cure SMA would like to thank the Cash Scanlon-Philips Foundation for their generous donation to fund a years’ worth of type II newly diagnosed care packages. […]
Read More ›Cure SMA Provides Funding for “Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA)” Published in Neurology
In a recent paper titled, “Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA)” Dr. Chad Heatwole and others describe a cross-sectional study of […]
Read More ›Community Spotlight: The Anton Jensen Family
Quinn Anton Jensen was diagnosed with spinal muscular atrophy (SMA) type II on March 2007 in Iowa City. Quinn’s mom, Nancy, recalls the genetic testing […]
Read More ›Community Spotlight: The Nelson Family
Mary was 4 months old when her parents, Ryan and Kate Nelson, suspected something wasn’t quite right with their daughter; she wasn’t bearing weight on […]
Read More ›Community Spotlight: The Zmaczynski Family
At 7 months old, Sarah Zmaczynski’s parents, Jill and John, noticed their daughter couldn’t bear weight on her legs. Sarah’s pediatrician responded with the “kids […]
Read More ›Community Spotlight: Doug McCullough
In 2014, Doug McCullough gave a TEDx talk at a Johnson & Johnson event in New Jersey that focused on disability inclusion in the workplace. […]
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