Front Page News
Cure SMA Receives NIH Grant
For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the SMA Researcher Meeting. This year’s […]
In Memory of Ken Emerson
Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, […]
21st Century Cures Unanimously Passes Committee
Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and […]
Collaborative Ways Cure SMA is Driving Research Results
Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work together […]
Meet the SMA Family that Helped Inspire 21st Century Cures
In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has helped inspire this legistlation. Chairman Fred Upton has […]
Cytokinetics and Astellas Release Further Details on Upcoming Phase 2 Trial
Cytokinetics, in partnership with Astellas, has officially announced that recruitment will begin in the second half of 2015 for a Phase 2 clinical trial testing […]
Cure SMA Joins The Research Acceleration and Innovation Network
Cure SMA has become a participating organization of The Research Acceleration and Innovation Network (TRAIN), a program of FasterCures, bringing the total number of venture […]
Update on SMA-FDA Interactions
The SMA drug pipeline has grown dramatically in just over a decade. Of the 17 programs in the pipeline, seven of these are in clinical […]
2015 Family Friendly Poster Session Presenters Announced
The Family Friendly Research Poster Session is one of the most anticipated events of our Annual SMA Conference. Each year, Cure SMA invites researchers from […]
Update on Clinical Development of RG7800
F. Hoffman-La Roche, PTC and the SMA Foundation recently provided an update on the clinical development of RG7800, an investigational SMN2 splicing modifier that is […]