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SMA Researchers and Clinicians from Around the World Gather at the 29th Annual SMA Research & Clinical Care Meeting

August 21, 2025
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At the end of June, SMA researchers and clinicians from around the world gathered in Anaheim, California, for the 29th Annual SMA Research & Clinical Care Meeting. Their common goals […]

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Cure SMA Shares Patient Voice and Needs with FDA

August 20, 2025
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  One of Cure SMA’s top priorities is to relay the SMA community’s experiences, preferences, and unmet needs to the United States Food and Drug Administration (FDA). This enables the […]

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Cure SMA Educates Insurers on Unmet Needs and Access Barriers of the SMA Community

August 18, 2025
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  Cure SMA completed a year-long advocacy effort to educate public and private insurers about the current state of spinal muscular atrophy (SMA), including the unmet needs of individuals with […]

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Key Congressional Committee Recommends New Federal Research in SMA

August 4, 2025
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A key congressional committee approved fiscal year 2026 legislation that now prioritizes new federal research funding for spinal muscular atrophy (SMA). The U.S. Senate Appropriations Committee recognized the unmet medical […]

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This August is Spinal Muscular Atrophy (SMA) Awareness Month! 

August 1, 2025
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Whether you live with SMA, know someone who does, work in research or care, or are beginning your journey with the community-SMA Awareness Month is a time to come together […]

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Thank You for an Amazing 2025 Annual SMA Conference!

July 24, 2025
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Thank you to everyone who attended the 2025 Annual SMA Conference at the Disneyland Hotel in Anaheim, California! It was an impactful weekend of opportunities to connect, learn, and have […]

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