Latest News
Biogen Releases Community Statement on Spinraza Access and New Data
Biogen has released the following community statement on Spinraza access and new research data. Dear Members of the SMA community, Thank you for your continued support, efforts to raise awareness […]
2018 Family Friendly Poster Session Presenters Announced
The Family Friendly Research Poster Session allows for one-on-one interactions between families and researchers. Cure SMA has invited researchers, who are attending SMA Researcher Meeting, to present family friendly research […]
Spring 2018 Issue of Directions Now Available
The Spring 2018 issue of Directions is now available online. Check out our Support & Care publications page to download past issues of Directions and Cure SMA’s Care Series booklets. […]
Cure SMA and Cytokinetics Announce National Platinum Partnership for 2018
Cure SMA and Cytokinetics are very pleased to announce that Cytokinetics has committed to a National Platinum Partnership for 2018. Cytokinetics will be supporting several of Cure SMA’s awareness, education, and […]
Indiana Becomes Fourth State to Adopt Newborn Screening for Spinal Muscular Atrophy
On Friday, Governor Eric Holcomb held a signing ceremony for Indiana House Bill 1017, adopting newborn screening for spinal muscular atrophy (SMA) and severe combined immunodeficiency (SCID). Dubbed “Graham’s Bill” […]
SMA Advocates Meet With House and Senate Offices
On Thursday, April 26, Cure SMA traveled with more than 70 spinal muscular atrophy advocates to Washington DC to meet with congressional offices. The advocates represented 24 states and DC. […]