Latest News
The 2017 Annual SMA Conference is Here!
The 2017 Annual SMA Conference, now in its 29th year, is set to kick off on June 29 and continue into a weekend full of programs and events that bring […]
Read More ›Call-to-Action: Senate Health Care Bill Released and Vote Expected Next Week
Yesterday, members of the Senate released draft text of their much awaited legislation called the Better Care Reconciliation Act (“Better Care Act”) of 2017. As you’ll recall from previous updates […]
Read More ›Cure SMA Update – Senate Healthcare Bill
The US Senate is currently working on legislation to modify the Affordable Care Act. Though details of the Senate’s plan are not yet available, legislation could be released as early […]
Read More ›Launch of Phase 2 SMA Industry Collaboration Announced
Cure SMA is pleased to announce the launch of Phase 2 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical companies, Cure […]
Read More ›2017 Annual SMA Conference Booklet Now Posted
The 2017 Annual SMA Conference Booklet is now posted. The booklet includes: A complete schedule with information about the special events we’ve got planned including: the Family Friendly Research Poster […]
Read More ›SMA Newborn Screening Moves Forward in Missouri and Florida
The spinal muscular atrophy community is celebrating significant progress toward adding SMA to newborn screening panels in two states. Missouri to Become the First State to Screen for SMA In […]
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