Latest News
New Report Highlights Caregiving Challenges of Individuals with Spinal Muscular Atrophy
Cure SMA released a national report on National Caregivers Day that chronicles the caregiving challenges experienced by individuals with spinal muscular atrophy (SMA) and recommends state and federal actions to […]
Read More ›Cure SMA is Thrilled to Announce the Establishment of our New Chapter in Puerto Rico!
Led by Keishla Rolon, Ramon Rivera Vega, Elizabeth Serrano, Natasha Santiago, and Brenda Luciano, Cure SMA’s Puerto Rico chapter has already been hard at work helping individuals and families throughout […]
Read More ›A Community’s Unwavering Love: How the Stickane Family Started a Foundation to Cure Spinal Muscular Atrophy
In a world where adversity often brings out the best in people, the Stickane family of Southlake, TX stands as a shining example of unwavering love and resilience. Their […]
Read More ›Community Spotlight: Holly Ianno and Family
Leland Ianno is eight years old, but he’s an old soul with a deep curiosity, a love of people, and a passion for history. His mom, Holly, says “Leland is […]
Read More ›100% of States Now Screening Newborns for SMA
You did it! We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states with the addition of Hawaii at the […]
Read More ›Nevada Starts Screening for SMA – Only One State Remains!
Nevada has become the 49th state to begin screening for spinal muscular atrophy (SMA). Nevada State Public Health Laboratory officials confirmed with Cure SMA that beginning December 21, 2023, all […]
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