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Updates on Pharmaceutical Companies Investing in SMA Drug Development

February 3, 2015
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Over the past decade, one of the most important advances in SMA drug development has been the number of pharmaceutical companies investing in treatments for SMA. Ten years ago, we […]

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10th Annual Grant Sheppard Memorial Scramble Reaches Milestone Year

January 30, 2015
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On Friday, August 22, 2014, the 10th Annual Grant Sheppard Memorial Scramble for SMA was held at Hickory Hills Country Club in Chilton, Wisconsin. This golf event is in memory […]

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Cure SMA Awards $140,000 Grant to Francesco Lotti, PhD, of Columbia University

January 29, 2015
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Cure SMA has awarded a $140,000 research grant to Francesco Lotti, PhD, at Columbia University, for his project, “Role of Sumoylation in SMN Function and SMA Pathology.” Survival motor neuron […]

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21st Century Cures Discussion Document Released

January 28, 2015
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The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to investigate how the government can […]

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Cure SMA Spring Event Season Kicks Off

January 23, 2015
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Thanks to our dedicated and amazing chapter leaders, event volunteers, and SMA families, we’re looking forward to an exciting spring events season. Over the next four months, our chapters and […]

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Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors

January 21, 2015
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Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” an article recently published in […]

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