Latest News

Bugenske Family Donates $17,000 to Cure SMA Equipment Pool

January 9, 2015
Posted in ,

On Saturday, October 25, 2014, Leo’s Pride and over 600 participants ran and walked a 5K or 1 mile in support of Leo Bugenske and Cure SMA. In addition to […]

Read More ›

Cure SMA Awards $140,000 Grant to Sara Custer, PhD, of Indiana University

January 8, 2015
Posted in , ,

Audrey Lewis founded Families of SMA, now Cure SMA, 30 years ago. Audrey recognized early on the importance of attracting new and talented researchers to SMA, with the hope that […]

Read More ›

Together, We Made History

January 7, 2015
Posted in , , ,

Thanks to you, we raised over $770,000 in the month of December, as part of our annual campaign. The stage is set for historic advances in SMA research over the […]

Read More ›

Cure SMA Announces New $50,000 Care Research Grant to Rebecca Davis in the Lab of Dr. Swoboda at University of Utah

December 30, 2014
Posted in ,

Cure SMA has awarded a $50,000 clinical care grant to Rebecca Hurst Davis in the lab of Dr. Kathy Swoboda, for her project focusing on blood sugar levels in SMA. […]

Read More ›

NIH Releases Summary of the SO-SMART Workshop

December 29, 2014
Posted in , , ,

During the Annual SMA Conference in Washington DC this past June, the National Institutes of Health (NIH) hosted a workshop on clinical trial design in SMA for drug developers, clinical […]

Read More ›

Fall 2014 Issue of Directions Now Online

December 26, 2014
Posted in ,

The Fall 2014 issue of Directions is now available. Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from all over the world connect […]

Read More ›
Scroll to Top