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Cure SMA Celebrates New DOT Rule for Accessible Air Travel

December 17, 2024
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Cure SMA is thrilled to share a major win for the SMA community: the U.S. Department of Transportation (DOT) has finalized its rule on ensuring safe accommodations for air travelers […]

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Biohaven Provides Update on Taldefgrobep Alfa Development Program for Spinal Muscular Atrophy

November 25, 2024
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In the RESILIENT SMA study, Biohaven announced today that taldefgrobep alpha showed clinically meaningful improvements in motor function at all time points on the Motor Function Measurement-32 scale (MFM-32), but […]

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SMA Community Advocacy Wins and Champions Celebrated at Cure SMA Event

November 20, 2024
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Individuals with spinal muscular atrophy (SMA) and their families recognized congressional champions and celebrated advocacy progress at Cure SMA’s Hope on the Hill event. U.S. Representative Sam Graves (MO-6) Photo: […]

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Celebrate 40 Years of Impact – Join Us in Making a Difference!

November 19, 2024
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Thank you for being an essential part of this journey and for believing in our mission. As we mark 40 years of dedicated service to the spinal muscular atrophy (SMA) […]

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Spinal Muscular Atrophy (SMA) Update in Best Practices: Recommendations for Treatment Considerations

November 6, 2024
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As part of our ongoing efforts to drive quality health care standardization and improvements for the SMA community, Cure SMA is pleased to announce the next publication in a series […]

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Make an Impact with Cure SMA’s Mission, Milestones, Momentum Campaign

November 1, 2024
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We’re kicking off our Mission, Milestones, Momentum Year-End Campaign with an incredible $50,000 matching gift. In honor of Hunter Rhodes, living with SMA, the Johns Family has generously donated $50,000 […]

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