Latest News

Genentech’s Risdiplam Shows Significant Improvement in Survival and Motor Milestones in Infants With Type 1 SMA

April 28, 2020
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      Genentech, a member of the Roche Group, today presented 1-year data from FIREFISH Part 2, a pivotal global study evaluating risdiplam in infants aged 1-7 months old with symptomatic […]

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Annual Cure SMA Community Update Survey Ready for Your Input

April 23, 2020
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Navigating the recent global health crisis, Coronavirus (COVID-19), has reinforced for us the importance of understanding what the SMA community is thinking, feeling, and experiencing. This allows us to more […]

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Cure SMA Launches New COVID-19 Support Package

April 23, 2020
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Despite the new reality of quarantines, remote working, and social distancing, Cure SMA would like you to know that our work for the SMA community continues.  Cure SMA remains vigilant […]

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COVID-19 Assistance Program Available to SMA Community

April 23, 2020
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Cure SMA realizes that quarantining is essential for individuals and families who live with SMA, many of whom are experiencing hardships due to the COVID-19 pandemic. In response, we are […]

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Grant Announcement: Cure SMA Awards $190,000 Grant to Stephen Meriney, Ph.D., University of Pittsburgh

April 17, 2020
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This article is the last in a series of Cure SMA grant announcements that have been shared throughout the past months. Cure SMA has awarded a $190,000 research grant to […]

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Cure SMA Announces Cancellation of 2020 Annual SMA Conference and Research & Clinical Care Meeting

April 9, 2020
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Cure SMA has been closely monitoring news and reports of the Coronavirus (COVID-19) outbreak, allowing us to make decisions about local events and offer new resources that support the SMA […]

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