Latest News
Cure SMA’s New Year Letter for 2020
Dear SMA Community, We are excited to be kicking off a new year and a new decade full of promise for the SMA community. Over the past week on our […]
Read More ›Community Spotlight: The Forcier Family
Kara and Ryan Forcier, of Stillwater, Minn., were on a rollercoaster almost immediately after the birth of their son, Zachary. Zachary was born with skin lesions that turned into blood […]
Read More ›Community Spotlight: Scurria Family
John and Krista Scurria, of Baton Rouge, La., believe in a parent’s intuition. Krista first became worried about the development of her oldest child, Josh, while she was still pregnant […]
Read More ›A Look Back at 2019: Cure SMA Research Year-in-Review
During our last fiscal year—July 1, 2018, to June 30, 2019—Cure SMA funded more than $7 million in new research and ongoing research. The resources will help accelerate research and […]
Read More ›Cure SMA Awards Grants to Four States to Expediate the Implementation of SMA Newborn Screening
With an incidence of approximately one in 11,000, more than 360 infants will be born annually with spinal muscular atrophy (SMA). Newborn screening can help to pre-empt irreversible motor neuron […]
Read More ›Biogen Issues Q4 2019 Community Statement on Spinraza
Dear Members of the SMA Community, As part of Biogen’s ongoing commitment to individuals living with, and caregivers affected by, spinal muscular atrophy (SMA), we are pleased to announce updates […]
Read More ›