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Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 27, 2019
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Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Neurofilaments as markers of neurodegeneration in SMA.” Dr. Sumner and her […]

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The Winter 2019 issue of Compass in Now Available Online

March 26, 2019
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The Winter 2019 issue of Compass is now available online. This issue covers Cure SMA’s latest drug discovery grant funding and features an updated SMA drug pipeline. Drug discovery, also […]

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Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA

March 22, 2019
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Nine Team Cure SMA runners completed the 2019 United Airlines New York City Half Marathon on Sunday, March 17. Together, the runners successfully raised over $15,000 for Cure SMA, the […]

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Record Number of Abstracts Submitted for the 2019 SMA Researcher Meeting

March 21, 2019
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Abstract submission is now closed for the 2019 SMA Researcher Meeting. We are excited to announce that we received 166 submissions, a record number. Our submissions come from researchers in […]

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Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

March 19, 2019
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Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by spinal muscular atrophy (SMA) and […]

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Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

March 14, 2019
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For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the voice of our community is […]

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