Our Impact

Community Update Survey Q&A

April 16, 2019
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Cure SMA recently launched the third annual Community Update Survey to address important issues in SMA treatment and care. The Community Survey covers several areas […]

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Cure SMA Care Center Network Expands to 10 Sites

April 11, 2019
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In 2018, Cure SMA launched the SMA Care Center Network, a collection of specialized clinics across the nation to help ensure all those living with […]

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Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 27, 2019
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Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Neurofilaments as markers of neurodegeneration in […]

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Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

March 19, 2019
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Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by […]

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Cure SMA Awards $150,000 Grant to Veronica Pessino, PhD, Salk Institute for Biological Sciences

February 22, 2019
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Audrey Lewis founded Families of SMA, now Cure SMA, 34 years ago. Audrey recognized early on the importance of attracting new and talented researchers to […]

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Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

February 11, 2019
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Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project entitled, “Function […]

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Cure SMA Announces Expanded Phase 3 of SMA Industry Collaboration

January 2, 2019
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Cure SMA is pleased to announce the launch of an expanded Phase 3 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted […]

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Hope on the Hill Congressional Dinner Raises $200,000

December 28, 2018
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The 8th Annual “Hope on the Hill” Congressional Dinner was held on Tuesday, November 27, 2018 at The Willard Hotel in Washington, DC. More than […]

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2018 Research Year-in-Review

December 21, 2018
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Over our past fiscal year—from July 1, 2017, to June 30, 2018—Cure SMA has funded over $5 million in new research funding. This funding will be […]

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Cure SMA Funding Leads to 16 New Research Publications in 2018

December 19, 2018
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An important goal of our research funding strategy is to share scientific findings with the broader scientific community. Scientists who receive Cure SMA funding often […]

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