Our Impact

Cure SMA Awards $150,000 Grant to Melissa Bowerman, PhD, at Keele University

February 21, 2024
Posted in , ,

Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA […]

100% of States Now Screening Newborns for SMA

January 3, 2024
Posted in , ,

You did it!   We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states with the […]

Nevada Starts Screening for SMA – Only One State Remains!

December 21, 2023
Posted in , ,

Nevada has become the 49th state to begin screening for spinal muscular atrophy (SMA). Nevada State Public Health Laboratory officials confirmed with Cure SMA that […]

Analysis: Cure SMA’s Risk/Benefit Survey

December 20, 2023
Posted in , ,

One of Cure SMA’s top priorities is to relay the SMA community’s treatment experiences and preferences to the United States Food and Drug Administration (FDA). […]

Administration Officials & Members of Congress Highlight SMA Community Advocacy at 12th Annual Hope on the Hill Washington, D.C. Event 

December 4, 2023
Posted in , ,

Two high-ranking Administration officials and several Members of Congress from key congressional committees participated in Cure SMA’s November 29th Hope on the Hill dinner and […]

August is SMA Awareness Month!

August 1, 2023
Posted in ,

Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA […]

Cure SMA Awards $100,000 Grant to Saravanan Arumugam, PhD, Universidad de Seville

April 5, 2023
Posted in , ,

Saravanan Arumugam, PhD, was awarded $100,000 for his research project, “Role of Cytosolic and Mitochondrial Ca2+ in the Pathogenesis of Spinal Muscular Atrophy.” Dr. Arumugam’s […]

District of Columbia Starts Screening for SMA During Rare Disease Month

February 22, 2023
Posted in , ,

Cure SMA is pleased to announce that the District of Columbia (DC) is now screening babies born in DC for spinal muscular atrophy (SMA). The […]

Cure SMA Awards $150,000 Grant to Florence Rage, PhD, at the Institute of Molecular Genetics of Montpellier

February 15, 2023
Posted in , ,

Florence Rage, PhD, was awarded $150,000 for her research project, “Deciphering the Mechanisms of RNA Transport along Axons to Understand the Progression of Spinal Muscular […]

Cure SMA Awards $150,000 Grant to Anton Blatnik, PhD, at The Ohio State University

February 8, 2023
Posted in , ,

Anton Blatnik, PhD, at The Ohio State University has been awarded $150,000 for his research project, “Determining Primary Splicing Changes in Spinal Muscular Atrophy.” Dr. […]

Scroll to Top