Search Results: Living with SMA issues
Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors
Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” […]
Cure SMA Announces New $30,000 Clinical Care Research Grant to Deborah Boroughs at BAYADA Home Health Care
Cure SMA has awarded a $30,000 clinical care grant to Deborah Boroughs, RN, MSN, for her project focusing on caregiver training. Individuals with SMA have […]
Cure SMA Announces New $50,000 Care Research Grant to Rebecca Davis in the Lab of Dr. Swoboda at University of Utah
Cure SMA has awarded a $50,000 clinical care grant to Rebecca Hurst Davis in the lab of Dr. Kathy Swoboda, for her project focusing on […]
Cure SMA Announces New $50,000 Clinical Care Research Grant to Nilesh Mehta at Boston Children’s Hospital
We’re excited to announce that we have awarded $50,000 clinical care grant to Dr. Nilesh Mehta, for his project focusing on nutrition in SMA. Some […]
Cure SMA Provides Record Number of Resources to Families Worldwide
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged […]
Cure SMA Announces New Subcommittee on Adults with SMA
Cure SMA recently announced the formation of the Subcommittee on Adult Outreach. This group will work to actively engage the adult SMA community in order […]
Scholar Rock Receives News on Biologics License Application (BLA) for Apitegromab from the U.S. FDA
Today, Scholar Rock announced that the U.S. Food and Drug Administration (FDA) has delayed the approval with a Complete Response Letter (CRL) for the apitegromab […]
Advocacy – Edits May 2025
Make today a breakthrough. State and federal policies impact nearly all aspects of life for people with spinal muscular atrophy (SMA). Advocacy is critical in […]
Why Give for Giving Tuesday?
Make today a breakthrough. Our spinal muscular atrophy (SMA) community has made great progress, but our work is not over! Through your generous donation, we […]
Community Update from Genentech
We are pleased to share the following SMA community letter from our partners at Genentech on their clinical development programs and initiatives. Dear SMA Community, […]